New to CysticFibrosis.com
Who are we? We are patients, families, friends, medical professionals and industry experts from all over the world, sharing […]
A Conversation on Filing Taxes with Cystic Fibrosis
CF Tax Deductions Often people with Cystic Fibrosis and families with children with Cystic Fibrosis are not aware of the […]
Cystic Fibrosis Resource and Information Needs Survey
Written by Melissa75 and Imogene In the Spring of 2015, we surveyed the CF community on resource and information needs. […]
Parenting Tips
Lisa Greene is a writer, educator and mother of two children with CF. She and child psychiatrist Dr. Foster Cline […]
Join the Community
WHY JOIN US? CysticFibrosis.com supports the largest and oldest global Cystic Fibrosis community on the web, founded in 1996, comprising […]
Ten Hurdles to Cystic Fibrosis Patient Adherence
By Jeanne Barnett on Jun 4, 2012 (source: EyeforPharma Blog) There are many factors which can influence the level of […]
Personal Spirometry and the Cystic Fibrosis Patient
Written by Jeanne Barnett As a moderator/founder of a vibrant online social health community: cysticfibrosis.com, I can attest to hundreds […]
Cystic Fibrosis genetics: Know Your CF Mutations
Source: CFF.org For the first time, drugs are available that treat the underlying cause of the disease in people with […]
Enzyme FAQs
Newly Diagnosed/Infancy The doctors want me to give the enzymes to my baby in food but he’s only a week […]
CF Patient To Climb the UK’s Three Highest Mountains in 24 Hours
Written by Leonor Mateus Ferreira Source: Cystic Fibrosis News Today Not long after his birth in 2013, Paul Siebenthal‘s son Noah was diagnosed […]