Alternative MedicineLiving With CFSurveyTreatments

Your Questions on Nutraceuticals

From our Survey in 2015 Qualitative Research: YOUR Questions   What are some natural treatments that are safe and effective to enhance regular treatments? Who will work with CF patients regarding natural remedies such as essential oils? What foods, natural remedies, or supplements have most helped patients slow the progression …

GeneticsLiving With CFRespiratory DiseaseTreatments

How cystic fibrosis promotes lung infections

From the NIH At a Glance Scientists discovered how cystic fibrosis raises the risk for lung infections. The findings also identify a novel potential therapeutic target. Cystic fibrosis is an inherited disorder that results in a buildup of thick and sticky mucus in the lungs, airways, and other organs. Excess …

AdvocacyClinical Trials

We Lobby

A Brief History of Our Lobbying Efforts in 2015   In April, 2015, we sent this letter to the FDA Committee: Sent: Thursday, April 02, 2015 12:17 PM To: PADAC Subject: on line patient community at Dear Dr. Hong, We run an on line patient community at Several …

Hypertonic Saline
FAQsLiving With CFResourcesTreatments

Cystic Fibrosis treatment: Hypertonic Saline Questions

These question were posed by and answered by: Michael McPeck, RRT Respiratory Therapist   What is hypertonic saline (HTS)? HTS is sterile water into which common salt (sodium chloride, NaCl) has been dissolved.  The degree of salinity, or salt concentration must be greater than 0.9% in order to be …

Self Management Tree
AdheranceFAQsLiving With CF

YOUR DATA! Your Questions on Self Management

Here are your questions on Self Management from our Survey last Spring What paperwork should I keep or throw away? More up to date convenient equipment Easiest ways to clean a nebulizer? How can I learn more about the various nebulizer on the market, and which are best? How much …