10 Ways to Help When a Friend is Diagnosed With a Chronic Disease

Imogene

This heartfelt article filled with personal experience will give you 10 great ways to respond when really “you may feel […]

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Flourescent Sensor is a new Low-Cost Tool for Cystic Fibrosis diagnosis

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Read the article here on sciencedaily.com “Scientists have developed a new diagnostic test for cystic fibrosis. The new device provides a […]

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Thank YOU! This research is complete!

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All of the goals were met in 20 hours!   This community loves to be part of research. Thank you! […]

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Mom takes on Vertex CEO about pricey Cystic Fibrosis Treatment Drugs

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In October, Oklahoma-based journalist and mom Juliana Keeping traveled to Boston with her son to confront Jeffrey Leiden, the CEO of […]

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Lung Bio-engineering Clinical Trial may benefit cystic fibrosis patients

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EX VIVO LUNG PERFUSION During an organ transplant, time is of the essence and Ex Vivo Lung Perfusion is no […]

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The Bible for Transplants: make data driven decisions about lung transplant

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The Scientific Registry of Transplant Recipients (SRTR) helps patients make data driven decisions about their transplant, such as lung transplants […]

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Rare Disease Patient Advocacy Summit

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Later this week, Jeanne Barnett will be attending the fifth annual RARE Patient Advocacy Summit run by Global Genes in […]

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Survey Shows A Lot of People Save Leftover Painkillers

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More than half of patients who get a prescription for opioid painkillers have leftover pills and keep them to use […]

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Med-IQ: Creating a Partnership for Adherence in Cystic Fibrosis treatment

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We were recently contacted by Med-IQ, a company that educates CF medical professionals and patients and caregivers. We looked at […]

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CRISPR Finds Mutated DNA and Is Okayed for Clinical Trial

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Since 2003, when we first started saving all our messages here at CysticFibrosis.com, Cystic Fibrosis genetics and our mutations have […]

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