social media feature pic jan 2017
JoinLiving With CFNews & EventsSupport

New on Social Media

We are active on social media – want to know the latest? Please follow the links to view some of the most recent social media news.  Post your own comment – or just see what others are saying. January 2017 Facebook: Facebook.com/KnowCF Facebook Member Post: A member of our community asks “Anyone …

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FinancialLiving With CFSupportTransplantsTreatments

Miracle Flights: free medically-related air travel for ill patients, including for Cystic Fibrosis treatment

Struggling to cover the cost of air travel to receive your medical care? Miracle Flights assists patients through free commercial air travel to obtain special medical care. Read more about this fantastic organization and how to apply below…   Blog article written in conjunction with Brooke Freeman, Community Outreach Officer …

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Member post: goals, managing expectations and disappointment

A little story: When I was 12, I participated in a big folk dancing competition through my school. It consisted of several hundred participants and we danced non-stop for hours in front of a selection panel. An elite group of dancers would be chosen to go on a week-long vacation …

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DiagnosisLiving With CFSupport

10 Ways to Help When a Friend is Diagnosed With a Chronic Disease

This heartfelt article filled with personal experience will give you 10 great ways to respond when really “you may feel speechless” at some surprising news a friend may give you. Full of empathy and gentleness.  This is one we all need as we struggle to be our best selves for …

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AdheranceLiving With CFSupportTechnology

Med-IQ: Creating a Partnership for Adherence

We were recently contacted by Med-IQ, a company that educates CF medical professionals and patients and caregivers. We looked at their resources and felt the community here at cysticfibrosis.com might be interested in learning more from them. Med-IQ’s mission is “To deliver education that brings measurable change in healthcare professional …

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Living With CFSupport

Looking for a career choice? What to study?

This is something new that may interest some of you creative entrepreneurs… Just in from Kent State in Ohio and I wonder how many other states and universities will be offering courses based on future inventions using the latest materials found in technology! A problem could be “Safety” in handling …

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FinancialJoinLiving With CFSupport

Happy Mother’s Day – Please Donate!

CFTechnology.org is a non-profit parent to CysticFibrosis.com, your CF community website. In order to keep this valuable resource alive and kicking, your donations are urgently needed. It just takes a few minutes to donate $5, $15, $25, $50, even $100, or whatever you can afford to ensure the continued presence …

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AdheranceLiving With CFParentingSupport

Parenting Children with Health Issues: From our Archives

This video was one of five presented on CysticFibrosis.com by Lisa Greene. Lisa is the mother of two children with CF. She is an excellent model of motherhood. Happy Mother’s Day! Salt and Light, Imogene

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FinancialLiving With CFSupport

Individual Counseling Offered

jricci brings us this great news: Through a very generous contribution Financial Support for Individual Counseling Services are being offered to the CF Community! Read More: CFQoL_Counseling_Flyer_2016

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Living With CFResearchSupport

The Importance of Treating Depression in People with CF

Depression can be a difficult subject to talk about, but it is important to be aware of the increased prevalence of depression in people with cystic fibrosis and other chronic health conditions, and to try to understand how depression, physical health, and general well-being are interrelated. In 2007, five doctors and …

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