My Journey with Cystic Fibrosis: Overcoming Obstacles and Embracing Self-Care – by Zain Arif
Life-Changing News Hello there! I’m Zain Arif, a 19-year-old who’s been living with Cystic Fibrosis (CF) since I was just […]
Life is Good! – by Kevin Munroe, 65 years young
*Note from the editor: Meet Kevin, a 65-year old “Grampy” with Cystic Fibrosis! My first thought was: I bet he […]
Tips on Taking Care of Your Lungs with COVID-19 (from a successful Cystic Fibrosis patient)
The cystic fibrosis community is at high risk for serious complications from COVID-19. Through a recent survey of the online […]
Gratitude: came in my inmail!
We all can reach back in our memories and think of something or someone who made a difference and just […]
Why Cystic Fibrosis and Blockchain? by LittleLab4CF
LittleLab4CF David Orthman, PhD How can BlockChain facilitate Pharmaceutical companies go-to-market strategy? The greatest barrier to doing business is inertia. […]
LittleLab4CF on the potential of an enormously valuable Genomic Diary
This blog was reproduced from a post by LittleLab4CF , a Super Moderator on the cysticfibrosis.com forum. “I found myself in a lively discussion […]
Gratitude! Remembering Blake’s example!
We all can reach back in our memories and think of something or someone who made a difference and just […]
An Interview: Jeanne Barnett and RXDigitalMarketing
Buddy Scalera of RXDigital Marketing interviewed Jeanne Barnett (founder of CysticFibrosis.com) on August 31, 2017. If you are curious about […]
The Unidos pela Vida Institute – spreading knowledge about Cystic Fibrosis in Brazil
Join us today as we learn more about the Unidos pela Vida Institute for Cystic Fibrosis in Brazil. Thank you […]
Orkambi has simply changed my life…a Cystic Fibrosis reflection
A member of our community with Cystic Fibrosis reflects on two years since starting Orkambi, a medication used to treat […]