A Brain, A Heart, Courage: the e-Patient community for Cystic Fibrosis
Back in 2010, Jeanne Barnett wrote about the e-patient, using the metaphor of the Wizard of Oz: it is still […]
The Data Will See You Now! and Cystic Fibrosis Data is Valuable!
I was invited to speak at the PanagoraPharma Conference on Mobile Technology on June 28, 2017. I arrived first thing […]
AbbVie scholarship for students with cystic fibrosis
Thanks to 25-years of medical advancement, the goal of pursuing higher education for many students with cystic fibrosis, an inherited […]
New on our Cystic Fibrosis Social Media (@knowcf)
We are active on social media – want to know the latest news? Please follow the links to see what is […]
Miracle Flights: free medically-related air travel for ill patients, including for Cystic Fibrosis treatment
Struggling to cover the cost of air travel to receive your medical care? Miracle Flights assists patients through free commercial […]
Member post: goals and managing expectations with Cystic Fibrosis
A little story: When I was 12, I participated in a big folk dancing competition through my school. It consisted […]
10 Ways to Help When a Friend is Diagnosed With a Chronic Disease
This heartfelt article filled with personal experience will give you 10 great ways to respond when really “you may feel […]
Med-IQ: Creating a Partnership for Adherence in Cystic Fibrosis treatment
We were recently contacted by Med-IQ, a company that educates CF medical professionals and patients and caregivers. We looked at […]
Looking for a career choice? What to study?
This is something new that may interest some of you creative entrepreneurs… Just in from Kent State in Ohio and […]
Parenting Children with Health Issues: From our Archives
This video was one of five presented on CysticFibrosis.com by Lisa Greene. Lisa is the mother of two children with […]