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featured_memberLiving With CFSupport

Member post: goals, managing expectations and disappointment

A little story: When I was 12, I participated in a big folk dancing competition through my school. It consisted of several hundred participants and we danced non-stop for hours in front of a selection panel. An elite group of dancers would be chosen to go on a week-long vacation …

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DiagnosisLiving With CFSupport

10 Ways to Help When a Friend is Diagnosed With a Chronic Disease

This heartfelt article filled with personal experience will give you 10 great ways to respond when really “you may feel speechless” at some surprising news a friend may give you. Full of empathy and gentleness.  This is one we all need as we struggle to be our best selves for …

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AdheranceLiving With CFSupportTechnology

Med-IQ: Creating a Partnership for Adherence

We were recently contacted by Med-IQ, a company that educates CF medical professionals and patients and caregivers. We looked at their resources and felt the community here at cysticfibrosis.com might be interested in learning more from them. Med-IQ’s mission is “To deliver education that brings measurable change in healthcare professional …

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Book Reviewsfeatured_memberLiving With CFVideo

It’s Been a Good Life Dad: My Son’s Struggle with Cystic Fibrosis

It’s Been a Good Life Dad: My Son’s Struggle with Cystic Fibrosis by Jerry E. Hendon Author Jerry Hendon writes: I have written a book about my son, Kevin, who died of cystic fibrosis in 1986 at age 18. The book, It’s Been a Good Life, Dad: My Son’s Struggle …

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