10 Ways to Help When a Friend is Diagnosed With a Chronic Disease
This heartfelt article filled with personal experience will give you 10 great ways to respond when really “you may feel […]
Flourescent Sensor is a new Low-Cost Tool for Cystic Fibrosis diagnosis
Read the article here on sciencedaily.com “Scientists have developed a new diagnostic test for cystic fibrosis. The new device provides a […]
Thank YOU! This research is complete!
All of the goals were met in 20 hours! This community loves to be part of research. Thank you! […]
Mom takes on Vertex CEO about pricey Cystic Fibrosis Treatment Drugs
In October, Oklahoma-based journalist and mom Juliana Keeping traveled to Boston with her son to confront Jeffrey Leiden, the CEO of […]
Lung Bio-engineering Clinical Trial may benefit cystic fibrosis patients
EX VIVO LUNG PERFUSION During an organ transplant, time is of the essence and Ex Vivo Lung Perfusion is no […]
The Bible for Transplants: make data driven decisions about lung transplant
The Scientific Registry of Transplant Recipients (SRTR) helps patients make data driven decisions about their transplant, such as lung transplants […]
Rare Disease Patient Advocacy Summit
Later this week, Jeanne Barnett will be attending the fifth annual RARE Patient Advocacy Summit run by Global Genes in […]
Survey Shows A Lot of People Save Leftover Painkillers
More than half of patients who get a prescription for opioid painkillers have leftover pills and keep them to use […]
Med-IQ: Creating a Partnership for Adherence in Cystic Fibrosis treatment
We were recently contacted by Med-IQ, a company that educates CF medical professionals and patients and caregivers. We looked at […]
CRISPR Finds Mutated DNA and Is Okayed for Clinical Trial
Since 2003, when we first started saving all our messages here at CysticFibrosis.com, Cystic Fibrosis genetics and our mutations have […]