Suggestions to Help You Manage Cystic Fibrosis at College

Imogene

Congratulations, you were accepted at the college of your choice and you’re getting ready for the next major transition in […]

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Technology’s Place in the Lives of Patients with Cystic Fibrosis

Imogene

Copyright © 2019 NetNoggin, LLC. All Rights Reserved. Technology’s Place in the Lives of Patients with Cystic Fibrosis Newcomer M1, […]

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Gratitude: came in my inmail!

Imogene

We all can reach back in our memories and think of something or someone who made a difference and just […]

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Going Back to School with Cystic Fibrosis (from our Archives)

Imogene

Monday, August 25, 2008 written by Lauren Beyenhoff based on a survey at Cysticfibrosis.com FreePics CF Goes Back to School […]

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Why Cystic Fibrosis and Blockchain? by LittleLab4CF

Imogene

LittleLab4CF  David Orthman, PhD How can BlockChain facilitate Pharmaceutical companies go-to-market strategy? The greatest barrier to doing business is inertia. […]

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LittleLab4CF (our own Geneticist with Cystic Fibrosis) Helps us Understand Pharma/Patients and Blockchain

Imogene

How can the data-sharing capabilities of BlockChain lead to lower development costs and increased efficiency? BlockChain can be compared to […]

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Welcome to CFTechnology.org video

Editor

We have a new introductory video about CFTechnology.org. Thank you to the talented Blake (with CF) for the fantastic job […]

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A New Model for Patient Engagement for Cystic Fibrosis Patients and Caregivers

Imogene

Our blog appears in the DIA global forum. It has the results of our initial survey (which took place from […]

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SSDI for people with Cystic Fibrosis

Editor

Does Cystic Fibrosis Qualify as a Disability for SSDI? Learn more about SSDI and Cystic Fibrosis. Article written by Danielle Roberts, a […]

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CURE-E-US: Our CF community has an UNMET NEED (Part 3)

Imogene

The survey: “Discovery, Research, and Profit”  has ended and I have presented at the World Orphan Drug Congress in Maryland. I […]

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