Survey: Future Casting for our Cystic Fibrosis Community! (Updates)

Imogene

Thanks to 860 participants for taking our survey at www.cftechnology.org. A survey can be a tool to future cast!  and […]

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A New Hope for CF! (Planetary Biosciences Review – Jan 2018)

Tim Wotton

To brighten this post up, I will review the exciting supplements Indrepta and TauriNAC using Star Wars parlance… I’m a […]

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Blockchain, Cystic Fibrosis and Linnia

Imogene

I want you all to know we are looking into the Blockchain company Ethereum and this email suggests we have […]

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What’s new on the Cystic Fibrosis social media pages (@KnowCF)?

missalexsbp

What’s new on the Cystic Fibrosis social media pages (@KnowCF)? We are active on social media – want to know […]

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Getting paid for all the work it takes being a patient or caregiver with Cystic Fibrosis

Imogene

You never do. Instead, other people get paid for your work: all the treatments: meds and trials, devices, hospitalizations, doctors […]

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A letter from Dr Corey Nislow – the obligation to change the way research is done

Editor

Dear CF community, My name is Corey Nislow, I am a 51-year-old academic researcher who has spent the last 30 […]

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Cure-E-Us…Cystic Fibrosis 2018!

Imogene

Cure-E-Us! Strange as it may seem in this time of healthcare anxiety, and a period of sustained political transformation during […]

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A Young Mom is Exploring BlockChain Technology

Imogene

I me Julia at the Global Genes Conference in California last September. She and I share an interest in BlockChain […]

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Your Cystic Fibrosis Data is Valuable! Watch the Video…Take the Survey!

Imogene

We hope you agree! Tell us what you think..Be Counted! Take the SURVEY NOW! Video by Lance 2020 ~ 1 […]

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Equal Access to Treatment for All with Cystic Fibrosis in the US?

Tamika Grubbs

Just in from Tamika Grubbs: Cystic Fibrosis is the same disease for at least 30,000 people in the united states […]

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