Survey: Future Casting for our Cystic Fibrosis Community! (Updates)
Thanks to 860 participants for taking our survey at www.cftechnology.org. A survey can be a tool to future cast! and […]
A New Hope for CF! (Planetary Biosciences Review – Jan 2018)
To brighten this post up, I will review the exciting supplements Indrepta and TauriNAC using Star Wars parlance… I’m a […]
Blockchain, Cystic Fibrosis and Linnia
I want you all to know we are looking into the Blockchain company Ethereum and this email suggests we have […]
What’s new on the Cystic Fibrosis social media pages (@KnowCF)?
What’s new on the Cystic Fibrosis social media pages (@KnowCF)? We are active on social media – want to know […]
Getting paid for all the work it takes being a patient or caregiver with Cystic Fibrosis
You never do. Instead, other people get paid for your work: all the treatments: meds and trials, devices, hospitalizations, doctors […]
A letter from Dr Corey Nislow – the obligation to change the way research is done
Dear CF community, My name is Corey Nislow, I am a 51-year-old academic researcher who has spent the last 30 […]
Cure-E-Us…Cystic Fibrosis 2018!
Cure-E-Us! Strange as it may seem in this time of healthcare anxiety, and a period of sustained political transformation during […]
A Young Mom is Exploring BlockChain Technology
I me Julia at the Global Genes Conference in California last September. She and I share an interest in BlockChain […]
Your Cystic Fibrosis Data is Valuable! Watch the Video…Take the Survey!
We hope you agree! Tell us what you think..Be Counted! Take the SURVEY NOW! Video by Lance 2020 ~ 1 […]
Equal Access to Treatment for All with Cystic Fibrosis in the US?
Just in from Tamika Grubbs: Cystic Fibrosis is the same disease for at least 30,000 people in the united states […]