intestines-1468807_640
Gastrointestinal DiseaseLiving With CFNutritionResearch

Intestinal Bacteria in Research Articles: immune system and digestion

Earlier this month, the article by LittleLab4CF, Fecal Microbial Transplants and the book “Gut” discussed the importance of having and feeding the right bacteria in our GI tracts. Our gut bacteria influences our immune systems, the comfort/pain level we have when digesting foods, and our ability to extract nutrients from …

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ATS article global warming
Living With CFResearchRespiratory Disease

Climate Change and Respiratory Infections (cystic fibrosis symptoms)

A recent article in the journal of the American Thoracic Society looks at how climate change is influencing respiratory infections. The authors describe studies that have shown a connection between weather events and shifting respiratory disease levels in the general populations, but more significantly in children and the elderly. The …

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Gut
Book Reviewsfeatured_memberGastrointestinal DiseaseLiving With CFNutrition

Fecal Microbial Transplants and “Gut” by Guilia Enders

Cystic Fibrosis symptoms manifest in many ways, including gastrointestinal problems. Over the years, CysticFibrosis.com member and moderator LittleLab4CF has helped many people with GI problems in the forums and through private messages. His insight and advice come from years of personal experience with GI disease and from being a scientist. …

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patient assistance controversy
AdvocacyFinancialLiving With CFTreatments

Understanding Pharma Controversies in the News

Many people have heard of the company, Turing Pharmaceuticals, which last year raised the price of a drug by over 5,000%, but most people don’t understand how and why that was possible. Looking at the issues behind the Turing Pharmaceutical controversy of this past year is worthwhile even though the …

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spirocall
Living With CFRespiratory DiseaseTechnology

SpiroCall: Lung Function Measured by Phone

Regular measurement in lung function changes through spirometry testing, is a vital part of monitoring cystic fibrosis symptoms. As this is test requires special equipment, a tool that can perform this test through a phone could bring spirometry to more patients. Computer scientists and engineers at the University of Washington …

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transplant
FAQsLiving With CFTransplantsTreatments

Cystic Fibrosis treatment: lung transplant facts and member experiences

Lung transplantation is something a person with Cystic Fibrosis might consider late in the progression of the disease, when life expectancy is about 1-2 more years and quality of life is severely compromised. It is a last resort in terms of Cystic Fibrosis treatment, but can be a life-saving procedure. …

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FinancialJoinLiving With CFSupport

Please donate to support the service offered by cysticfibrosis.com

CFTechnology.org is a non-profit parent to CysticFibrosis.com, your Cystic Fibrosis community website. In order to keep this valuable resource alive and kicking, your donations are urgently needed. It just takes a few minutes to donate $5, $15, $25, $50, even $100, or whatever you can afford to ensure the continued …

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Cystic Sisters
Living With CFParentingTransplantsVideo

Documentary: Sisters living with Cystic Fibrosis

Olivia Shivas from Attitude Pictures in New Zealand wrote to cysticfibrosis.com about a documentary series her organization has created that explores the lives of people living with serious health conditions and disabilities. One of their documentaries is about two sisters, Kristie and Nikki, who are young moms with cystic fibrosis. …

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DiagnosisFAQsGeneticsLiving With CF

Cystic Fibrosis testing: Genetic and Rare Diseases Information Center

The National Institutes of Health (NIH) publishes up-to-date information about cystic fibrosis testing on its Genetic and Rare Disease Information Center webpage (GARD). This is their FAQ about testing and resources. It discusses what situations warrant genetic testing, what tests are available and how much they cost, and how to …

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survey
Living With CFResearchSurvey

Survey of Cystic Fibrosis Patients by GeneFo

As reported on the website Cystic Fibrosis News Today,GeneFo, the online platform for organizing different chronic disease communities, surveyed 2,400 people with Cystic Fibrosis. The questions they asked included: How are you feeling today? Depressed (39%) and Tired (34%) were top answers. What is your preferred calorie booster? Meat (37%) …

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