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DiagnosisGeneticsLiving With CF

New Guidelines for Cystic Fibrosis Diagnosis

New Guidelines for Cystic Fibrosis Diagnosis A group of 32 scientists from nine countries have updated the guidelines for Cystic Fibrosis diagnosis. They published an article last month in The Journal of Pediatrics and the synopsis can be found here in Science Daily. The scientists looked at data from people …

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DiagnosisLiving With CFSupport

10 Ways to Help When a Friend is Diagnosed With a Chronic Disease

This heartfelt article filled with personal experience will give you 10 great ways to respond when really “you may feel speechless” at some surprising news a friend may give you. Full of empathy and gentleness. ┬áThis is one we all need as we struggle to be our best selves for …

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DiagnosisFAQsGeneticsLiving With CF

Genetic and Rare Diseases Information Center

The National Institutes of Health (NIH) publishes up-to-date information about testing for cystic fibrosis on its Genetic and Rare Disease Information Center webpage (GARD). This is their FAQ about testing and resources. It discusses what situations warrant genetic testing, what tests are available and how much they cost, and how …

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DiagnosisFAQsLiving With CF

Newly Diagnosed

Written by Aboveallislove Introduction Welcome to CysticFibrosis.com. If you are new to Cystic Fibrosis because you recently learned your unborn or newborn baby has, or may have, Cystic Fibrosis, please read on. We wrote this overview for you because we know, we really, really know, what you are going through. …

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