Your Cystic Fibrosis Data is Valuable! Watch the Video…Take the Survey!
We hope you agree! Tell us what you think..Be Counted! Take the SURVEY NOW! Video by Lance 2020 ~ 1 […]
Equal Access to Treatment for All with Cystic Fibrosis in the US?
Just in from Tamika Grubbs: Cystic Fibrosis is the same disease for at least 30,000 people in the united states […]
The Unidos pela Vida Institute – spreading knowledge about Cystic Fibrosis in Brazil
Join us today as we learn more about the Unidos pela Vida Institute for Cystic Fibrosis in Brazil. Thank you […]
Tamika Grubbs RN Here to Help our Cystic Fibrosis Community!
Hello, my name is Tamika Grubbs and I am a CF nurse consultant with over 4 years of experience. In […]
New on Cystic Fibrosis Social Media (@knowCF)
What’s new on the Cystic Fibrosis social media pages (@KnowCF)? We are active on social media – want to know […]
Fertile Areas for Experimentation: a New App for Cystic Fibrosis!
One of our Cystic Fibrosis Digital Opinion Leaders speak about the need for an app that could help patients record […]
Make Friends with your Legislators! Tell them about Cystic Fibrosis.
Especially for Cystic Fibrosis, how the government acts on the Accountable Care Act (ObamaCare) does make a difference! Since Healthcare […]
Understanding Pharma Controversies in the News
Many people have heard of the company, Turing Pharmaceuticals, which last year raised the price of a drug by over […]
Put your legislators on your team!
by: Peter S. Barnett PT, DPT, OCS In the USA… Do you know who your lawmakers are? To anyone who […]
We Lobby
A Brief History of Our Lobbying Efforts in 2015 In April, 2015, we sent this letter to the FDA […]