The Data Will See You Now! and Cystic Fibrosis Data is Valuable!
I was invited to speak at the PanagoraPharma Conference on Mobile Technology on June 28, 2017. I arrived first thing […]
Treatment for Cystic Fibrosis: Vertex Acquires Concert’s CFTR Potentiator CTP-656
Vertex Pharmaceuticals recently purchased the Phase 2 cystic fibrosis potentiator drug CTP-656 from Concert Pharmaceuticals. The deal is estimated to […]
New on our Cystic Fibrosis Social Media (@knowcf)
We are active on social media – want to know the latest news? Please follow the links to see what […]
New on our Cystic Fibrosis Social Media (@knowcf)
We are active on social media – want to know the latest news? Please follow the links to see what is […]
ORKAMBI® (Lumacaftor/Ivacaftor) latest news: Germany, Australia availability
ORKAMBI® reimbursement agreement reached for Germany – December 19, 2016 Vertex Announces German Reimbursement Agreement for ORKAMBI® (Lumacaftor/Ivacaftor), the First Medicine […]
North American Cystic Fibrosis Conference 2016
The 30th annual North American Cystic Fibrosis Conference took place in October 2016 in Orlando, FL and offered more more than […]
Rare Disease Patient Advocacy Summit
Later this week, Jeanne Barnett will be attending the fifth annual RARE Patient Advocacy Summit run by Global Genes in […]
Barnyard Dust and Preventing Asthma in Children (one of many Cystic Fibrosis symptoms)
People with cystic fibrosis have infection and inflammation in their lungs, and some also have problems with asthma, making asthma […]
SuperHero DNA
Study finds individuals immune to severe diseases. A new study has found that certain people’s genes have evolved in such […]
Surprising Benefits from CF Research
CF Research May Help Agriculture Cystic Fibrosis is often referred to as an orphan disease i.e. research benefits a relatively […]