Long COVID Breathlessness
– By Aoife Rafter I was doing so well, isolating and laying low the past 2 years when COVID cases […]
Breathwork for Parents and PWCF (People With Cystic Fibrosis)
– By Aoife Rafter How Breathwork Works I’ve written about Breathwork specifically for people with respiratory conditions on here before, […]
Stem cell transplants for lung regeneration – promising breakthrough in China
For the first time, researchers have succeeded in using stem cell transplantation to regenerate damaged lung tissue It has been reported […]
TauriNAC Now Available
This summer, Sharktank Research Foundation and Planetary Biosciences released a product called TauriNAC. It contains NAC (N-Acetylcysteine), taurine, magnesium, green […]
Home Monitoring vs. Traditional Care in CF: Year-Long Study Results
A study of home monitoring vs. traditional cystic fibrosis care in 267 patients age fourteen and older showed that after […]
Lung Clearance Index Improved in Children Ages 6-11 on Ivacaftor/Lumacaftor
Ivacaftor/Lumacaftor Improves Lung Clearance Index Score In Children A new phase 3 study, led by The Hospital for Sick Children […]
Outcomes and Tolerances in Cystic Fibrosis Treatment Lumacaftor/Ivacaftor
Last month, the results of a study were published that looked at the progress and side effects of the cystic […]
Orkambi Study On Children Age 6-12 With DDF508: Cystic Fibrosis Treatment
Results are in from a 24-week study of Orkambi (lumacaftor/ivacaftor – a medication used in cystic fibrosis treatment) in 58 children […]
University of British Columbia studying B-cepacia with some success!
Burkholderia cenocepacia has been a very hard to treat bacterial infection for our Cystic Fibrosis community. Some of you may […]
Risk of Hearing Loss from IV Aminoglycosides in Cystic Fibrosis
Cumulative exposure to IV tobramycin and amikacin, which are critical for treating cystic fibrosis infections, increases the risk of hearing […]