How to manage teenage years with Cystic Fibrosis – Cerys Upstone
Teenage years – ‘The best years of your life!’ they say. Finding independence, taking on new responsibilities, making friends, partying, […]
Large Scale CF survey on Personal Health and Wellness
The Cystic Fibrosis (CF) community is ripe for a new model of patient engagement in research, with medical data collection […]
Gratitude: came in my inmail!
We all can reach back in our memories and think of something or someone who made a difference and just […]
Cure-E-Us: World Orphan Drug Congress Part 2
The Initial Industry CFTR Screen Programs consisted of Epix, Genzyme, Galapagos, Fold, Amri, Aurora, and CombinatoRx Preston Campbell the […]
Gratitude! Remembering Blake’s example!
We all can reach back in our memories and think of something or someone who made a difference and just […]
Market Research for Pulmozyme Users: Gift Cards given for an on line interview.
Again, this year we have been asked to participate in on-line Market Research. We are seeking three different groups for […]
Your Cystic Fibrosis Data is Valuable! Watch the Video…Take the Survey!
We hope you agree! Tell us what you think..Be Counted! Take the SURVEY NOW! Video by Lance 2020 ~ 1 […]
Personal Indrepta Results
I wanted to report the latest news we are seeing with my daughter using Indrepta. She is 19 years old […]
Cystic Fibrosis fundraiser: Support us through AmazonSmile at no additional cost to you
Did you know that cftechnology.org is registered with AmazonSmile? An easy way to support a Cystic Fibrosis fundraiser! AmazonSmile is […]