Long COVID Breathlessness

Editor

– By Aoife Rafter I was doing so well, isolating and laying low the past 2 years when COVID cases […]

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Breathwork for Parents and PWCF (People With Cystic Fibrosis)

Editor

– By Aoife Rafter How Breathwork Works I’ve written about Breathwork specifically for people with respiratory conditions on here before, […]

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Stem cell transplants for lung regeneration – promising breakthrough in China

Editor

For the first time, researchers have succeeded in using stem cell transplantation to regenerate damaged lung tissue It has been reported […]

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TauriNAC Now Available

jimcaldwell

This summer, Sharktank Research Foundation and Planetary Biosciences released a product called TauriNAC. It contains NAC (N-Acetylcysteine), taurine, magnesium, green […]

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Home Monitoring vs. Traditional Care in CF: Year-Long Study Results

Melissa75

A study of home monitoring vs. traditional cystic fibrosis care in 267 patients age fourteen and older showed that after […]

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Lung Clearance Index Improved in Children Ages 6-11 on Ivacaftor/Lumacaftor

Melissa75

Ivacaftor/Lumacaftor Improves Lung Clearance Index Score In Children A new phase 3 study, led by The Hospital for Sick Children […]

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Outcomes and Tolerances in Cystic Fibrosis Treatment Lumacaftor/Ivacaftor

Melissa75

Last month, the results of a study were published that looked at the progress and side effects of the cystic […]

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Orkambi Study On Children Age 6-12 With DDF508: Cystic Fibrosis Treatment

Melissa75

Results are in from a 24-week study of Orkambi (lumacaftor/ivacaftor – a medication used in cystic fibrosis treatment) in 58 children […]

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hard to treat Burkholderia cenocepacia

University of British Columbia studying B-cepacia with some success!

Imogene

Burkholderia cenocepacia has been a very hard to treat bacterial infection for our Cystic Fibrosis  community.  Some of you may […]

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Risk of Hearing Loss from IV Aminoglycosides in Cystic Fibrosis

Melissa75

Cumulative exposure to IV tobramycin and amikacin, which are critical for treating cystic fibrosis infections, increases the risk of hearing […]

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