How to Keep a Healthy Mindset when Unwell with CF
– Written by Aoife P. R. I was recently discharged from a 2-week stay in hospital. My chest got quite […]
Tips on Taking Care of Your Lungs with COVID-19 (from a successful Cystic Fibrosis patient)
The cystic fibrosis community is at high risk for serious complications from COVID-19. Through a recent survey of the online […]
DIY nebulizer sterilizer hack for Cystic Fibrosis treatments (member story)
**Note: this is not medical advice and this method has not been approved by any medical professionals or suppliers. It […]
Cure-E-Us…Cystic Fibrosis 2018!
Cure-E-Us! Strange as it may seem in this time of healthcare anxiety, and a period of sustained political transformation during […]
A Conversation with Gunnar Esiason
Gunnar Esiason is the son of retired American NFL quarterback, Norman (Boomer) Esiason. He is twenty-six years old and living […]
Digital Spirometry and the Cystic Fibrosis patient
For Cystic Fibrosis, the spirometry test given by the clinic is a very important measurement. From Wikipedia we learn: “Spirometry […]
An App for Cystic Fibrosis to bring Data to Market
Update on our app for Cystic Fibrosis: the pilot study We are getting ready for our Pilot Study: 20 patients […]
Fertile Areas for Experimentation: a New App for Cystic Fibrosis!
One of our Cystic Fibrosis Digital Opinion Leaders speak about the need for an app that could help patients record […]
Evolution of a New App for Cystic Fibrosis management
Behind The Scenes With A New App For Managing Your Cystic Fibrosis By Jeanne Barnett, founder of CysticFibrosis.com In my […]
Think INSIDE the box for easier inhaled treatments – cystic fibrosis treatment
It’s taken me a long time, but I finally have a ‘system’ that has made inhaled treatments easier to keep […]