(Cystic Fibrosis Diabetes) First FDA approved artificial pancreas and other 2016 Digital health highlights
The “What We Learnt in Digital Health in 2016” article (by Bertalan Meskó, MD, PhD) takes a look at the […]
Vitamin D Supplements May Help Improve Lung Function in Cystic Fibrosis
This interesting pilot study examined the impact of vitamin D on Cystic Fibrosis patients’ lung function. In addition to the […]
ORKAMBI® (Lumacaftor/Ivacaftor) latest news: Germany, Australia availability
ORKAMBI® reimbursement agreement reached for Germany – December 19, 2016 Vertex Announces German Reimbursement Agreement for ORKAMBI® (Lumacaftor/Ivacaftor), the First Medicine […]
Member post: goals and managing expectations with Cystic Fibrosis
A little story: When I was 12, I participated in a big folk dancing competition through my school. It consisted […]
Lumacaftor/Ivacaftor longer trial on Heterozygous F508del Cystic Fibrosis Patients
At the end of November, the results of a clinical trial of Lumacaftor/Ivacaftor, also known as Orkambi, in CF patients […]
Think INSIDE the box for easier inhaled treatments – cystic fibrosis treatment
It’s taken me a long time, but I finally have a ‘system’ that has made inhaled treatments easier to keep […]
Cystic Fibrosis Genetics: First Structural Map of Cystic Fibrosis Protein
First structural map of the cystic fibrosis protein sheds light on how mutations cause disease. This article highlights this recent […]
The Lung Microbiome and Dysbiosis
The “microbiome” is a hot topic in respiratory medicine, with researchers from diverse fields such as chronic obstructive pulmonary disease, […]
Make Friends with your Legislators! Tell them about Cystic Fibrosis.
Especially for Cystic Fibrosis, how the government acts on the Accountable Care Act (ObamaCare) does make a difference! Since Healthcare […]
Redesigning Prescription Medication Inserts
Six everyday items were re-imagined by designers in this week’s New York Times Magazine. A data visualization firm, Periscopic, and […]