(Cystic Fibrosis Diabetes) First FDA approved artificial pancreas and other 2016 Digital health highlights

Editor

The “What We Learnt in Digital Health in 2016” article (by Bertalan Meskó, MD, PhD) takes a look at the […]

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Vitamin D Supplements May Help Improve Lung Function in Cystic Fibrosis

Editor

This interesting pilot study examined the impact of vitamin D on Cystic Fibrosis patients’ lung function. In addition to the […]

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ORKAMBI® (Lumacaftor/Ivacaftor) latest news: Germany, Australia availability

Editor

ORKAMBI® reimbursement agreement reached for Germany – December 19, 2016 Vertex Announces German Reimbursement Agreement for ORKAMBI® (Lumacaftor/Ivacaftor), the First Medicine […]

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Member post: goals and managing expectations with Cystic Fibrosis

Editor

A little story: When I was 12, I participated in a big folk dancing competition through my school. It consisted […]

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Lumacaftor/Ivacaftor longer trial on Heterozygous F508del Cystic Fibrosis Patients

Melissa75

At the end of November, the results of a clinical trial of Lumacaftor/Ivacaftor, also known as Orkambi, in CF patients […]

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Think INSIDE the box for easier inhaled treatments – cystic fibrosis treatment

Editor

It’s taken me a long time, but I finally have a ‘system’ that has made inhaled treatments easier to keep […]

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Cystic Fibrosis Genetics: First Structural Map of Cystic Fibrosis Protein

Imogene

First structural map of the cystic fibrosis protein sheds light on how mutations cause disease. This article highlights this recent […]

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The Lung Microbiome and Dysbiosis

Melissa75

The “microbiome” is a hot topic in respiratory medicine, with researchers from diverse fields such as chronic obstructive pulmonary disease, […]

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Make Friends with your Legislators! Tell them about Cystic Fibrosis.

Imogene

Especially for Cystic Fibrosis, how the government acts on the Accountable Care Act  (ObamaCare) does make a difference! Since Healthcare […]

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Redesigning Prescription Medication Inserts

Melissa75

Six everyday items were re-imagined by designers in this week’s New York Times Magazine. A data visualization firm, Periscopic, and […]

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