Why your ADHD Symptoms Might Actually be Trauma
– By Tina Clarke Results from studies like the TIDES study indicate that the prevalence of ADHD symptoms in children […]
Cure-E-Us: Imogene at the World Orphan Drug Conference 2018 Part 1
World Orphan Drug Conference 2018, April 25-27 (Part 1) Getting to the Conference! I drove from northern NJ …5 hours […]
Stem cell transplants for lung regeneration – promising breakthrough in China
For the first time, researchers have succeeded in using stem cell transplantation to regenerate damaged lung tissue It has been reported […]
A letter from Dr Corey Nislow – the obligation to change the way research is done
Dear CF community, My name is Corey Nislow, I am a 51-year-old academic researcher who has spent the last 30 […]
A Young Mom is Exploring BlockChain Technology
I me Julia at the Global Genes Conference in California last September. She and I share an interest in BlockChain […]
Your Cystic Fibrosis Data is Valuable! Watch the Video…Take the Survey!
We hope you agree! Tell us what you think..Be Counted! Take the SURVEY NOW! Video by Lance 2020 ~ 1 […]
The Data Will See You Now! and Cystic Fibrosis Data is Valuable!
I was invited to speak at the PanagoraPharma Conference on Mobile Technology on June 28, 2017. I arrived first thing […]
Home Monitoring vs. Traditional Care in CF: Year-Long Study Results
A study of home monitoring vs. traditional cystic fibrosis care in 267 patients age fourteen and older showed that after […]
Lung Clearance Index Improved in Children Ages 6-11 on Ivacaftor/Lumacaftor
Ivacaftor/Lumacaftor Improves Lung Clearance Index Score In Children A new phase 3 study, led by The Hospital for Sick Children […]
Personal Indrepta Results
I wanted to report the latest news we are seeing with my daughter using Indrepta. She is 19 years old […]