Radio Interview: CRISPR Gene Editing (relevant to Cystic Fibrosis genetics)
Radio Interview: CRISPR Gene Editing (relevant to Cystic Fibrosis genetics)
“There has never been a more powerful biological tool or one with more potential to both improve the world and […]
Miracle Flights: free medically-related air travel for ill patients, including for Cystic Fibrosis treatment
Struggling to cover the cost of air travel to receive your medical care? Miracle Flights assists patients through free commercial […]
Cystic Fibrosis Lung Microbiome: Diversity and Lung Function
The article, The Lung Microbiome and Airway Disease, published September 2016 in the Annals of the American Thoracic Society, describes […]
CFTR Function and Cigarette Smoke
Scientists are looking at how the CFTR (Cystic Fibrosis Transmembrane Conductance Regulator) potentiator, Ivacaftor, might be used in COPD, specifically […]
Potential benefits of honey in Cystic Fibrosis Treatment
Honey has been used for centuries as a food and sweetener but also for its healing properties. Early uses of […]
(Cystic Fibrosis Diabetes) First FDA approved artificial pancreas and other 2016 Digital health highlights
The “What We Learnt in Digital Health in 2016” article (by Bertalan Meskó, MD, PhD) takes a look at the […]
Vitamin D Supplements May Help Improve Lung Function in Cystic Fibrosis
This interesting pilot study examined the impact of vitamin D on Cystic Fibrosis patients’ lung function. In addition to the […]
ORKAMBI® (Lumacaftor/Ivacaftor) latest news: Germany, Australia availability
ORKAMBI® reimbursement agreement reached for Germany – December 19, 2016 Vertex Announces German Reimbursement Agreement for ORKAMBI® (Lumacaftor/Ivacaftor), the First Medicine […]
Member post: goals and managing expectations with Cystic Fibrosis
A little story: When I was 12, I participated in a big folk dancing competition through my school. It consisted […]
Lumacaftor/Ivacaftor longer trial on Heterozygous F508del Cystic Fibrosis Patients
At the end of November, the results of a clinical trial of Lumacaftor/Ivacaftor, also known as Orkambi, in CF patients […]