PGCFT
AdheranceLiving With CFResearchTechnology

Evolution of a New App for Cystic Fibrosis management

Behind The Scenes With A New App For Managing Your Cystic Fibrosis By Jeanne Barnett, founder of CysticFibrosis.com In my 21 years of operating CysticFibrosis.com and from reading over two million messages in our forums, I’ve learned that CF patients generate fascinating data that is valuable to other patients, caregivers, …

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thinkinginsidethebox
AdheranceLiving With CFResourcesTreatments

Think INSIDE the box for easier inhaled treatments – cystic fibrosis treatment

It’s taken me a long time, but I finally have a ‘system’ that has made inhaled treatments easier to keep up with. Background In childhood, I was very compliant with the CF treatments, as my parents helped me. I didn’t need to think about it; it just happened. In my late …

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rx-redesign
AdheranceLiving With CFTreatments

Redesigning Prescription Medication Inserts

Six everyday items were re-imagined by designers in this week’s New York Times Magazine. A data visualization firm, Periscopic, and Thomas Goetz of Iodine, a health information website, created a more informative and easier to understand prescription medication insert that can be viewed here (scroll down the page to find …

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bluetooth
AdheranceLiving With CFResearchTechnology

Bluetooth-enabled tech shows promise for adherence in Cystic Fibrosis treatment

A device that monitors inhaled antibiotic use in Cystic Fibrosis treatment, and transmits the information to doctors via Bluetooth technology resulted in improved adherence and lung function in a pilot study from Ventura County Medical Center in Ventura, California. Reported in a press release from the journal Chest this month: …

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mediq
AdheranceLiving With CFSupportTechnology

Med-IQ: Creating a Partnership for Adherence in Cystic Fibrosis treatment

We were recently contacted by Med-IQ, a company that educates CF medical professionals and patients and caregivers. We looked at their resources and felt the community here at cysticfibrosis.com might be interested in learning more from them. Med-IQ’s mission is “To deliver education that brings measurable change in healthcare professional …

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loveandlogic
AdheranceLiving With CFParentingSupport

Parenting Children with Health Issues: From our Archives

This video was one of five presented on CysticFibrosis.com by Lisa Greene. Lisa is the mother of two children with CF. She is an excellent model of motherhood. Happy Mother’s Day! Salt and Light, Imogene

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newyorkerdecember62004
AdheranceLiving With CFResearch

Dr. Warren Warwick, The Bell Curve

The Bell Curve Dr. Warwick has made a study of what it takes to do better than everyone else.  He will be missed by the CF Community! What happens when patients find out how good their doctors really are? BY ATUL GAWANDE Every illness is a story, and Annie Page’s …

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Self Management Tree
AdheranceFAQsLiving With CF

YOUR DATA! Your Questions on Self Management

Here are your questions on Self Management from our Survey last Spring What paperwork should I keep or throw away? More up to date convenient equipment Easiest ways to clean a nebulizer? How can I learn more about the various nebulizer on the market, and which are best? How much …

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ParentingTips_header
AdheranceLiving With CFParentingSupport

Parenting Tips

Lisa Greene is a writer, educator and mother of two children with CF. She and child psychiatrist Dr. Foster Cline wrote a book about parenting children with health issues. The book can be found here, and this is her website www.TipsForCFParents.com Below is an article about five crucial concepts that …

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takemedicine
AdheranceLiving With CF

Ten Hurdles to Cystic Fibrosis Patient Adherence

By Jeanne Barnett on Jun 4, 2012 (source: EyeforPharma Blog) There are many factors which can influence the level of patient adherence in any given treatment, Jeanne Barnett looks at how social platforms can provide the answers and presents her findings. You may already be aware of the great success …

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