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Wabi Baby Steam Sterilizer Contest

Photography Contest for Cystic Fibrosis Awareness MonthEnter to Win! Take a photograph of your system for cleaning CF respiratory or feeding tube equipment and enter to win a Wabi Baby Steam Sterilizer & Dryer – the only commercial steam sterilizer to be tested on CF pathogens. Cleaning nebulizer parts is an important part …

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Parenting Children with Health Issues: From our Archives

This video was one of five presented on CysticFibrosis.com by Lisa Greene. Lisa is the mother of two children with CF. She is an excellent model of motherhood. Happy Mother’s Day! Salt and Light, Imogene

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Character

The Science of Character

The Science of Character (8 mins) explores the neuroscience and social science that proves that we can shape who we are, and who we want to be. Learn More…

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Cystic Sisters

Documentary: Sisters living with Cystic Fibrosis

Olivia Shivas from Attitude Pictures in New Zealand wrote to cysticfibrosis.com about a documentary series her organization has created that explores the lives of people living with serious health conditions and disabilities. One of their documentaries is about two sisters, Kristie and Nikki, who are young moms with cystic fibrosis. …

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When a Bad Animal Model is Good: Cystic Fibrosis

A “good” animal model is one that has the same symptoms of a disease that we do, right? Not always. Sometimes we can actually learn more when an animal is not a perfect model; their good health can reveal new points of intervention. That’s the case for cystic fibrosis (CF), …

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SuperHero DNA

Study finds individuals immune to severe diseases. A new study has found that certain people’s genes have evolved in such a way that they are immune to certain severe inherited conditions. The study involved the analysis of previously collected DNA sets totaling 589,306 genomes from around the world with researchers hoping …

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Cystic Fibrosis testing: Genetic and Rare Diseases Information Center

The National Institutes of Health (NIH) publishes up-to-date information about cystic fibrosis testing on its Genetic and Rare Disease Information Center webpage (GARD). This is their FAQ about testing and resources. It discusses what situations warrant genetic testing, what tests are available and how much they cost, and how to …

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sinuses

Cystic Fibrosis symptoms: Mayo clinic’s sinusitis treatment suggestions

For many patients, chronic sinusitis is a part of their many Cystic Fibrosis symptoms. From the Mayo Clinic, about sinusitis: The goal of treating chronic sinusitis is to: Reduce sinus inflammation Keep your nasal passages draining Eliminate the underlying cause Reduce the number of sinusitis flare-ups Treatments to relieve symptoms …

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lungs

Better Lung Scanning Technology

New scanning technology which will give a much clearer picture of lung disease has taken a major step forward thanks to scientists at The University of Nottingham. The experts at the Sir Peter Mansfield Imaging Centre have developed a process using specially treated krypton gas as an inhalable contrast agent …

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Survey of Cystic Fibrosis Patients by GeneFo

As reported on the website Cystic Fibrosis News Today,GeneFo, the online platform for organizing different chronic disease communities, surveyed 2,400 people with Cystic Fibrosis. The questions they asked included: How are you feeling today? Depressed (39%) and Tired (34%) were top answers. What is your preferred calorie booster? Meat (37%) …

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