Roche Virtual Summit Lauren Brenneman speaks Innovation and the CF community

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Lauren Brenneman of CFTEchnology speaks about the mission of patients to take charge of their data at the Roche Virtual Summit Patient Panel

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Why Cystic Fibrosis and Blockchain? by LittleLab4CF

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LittleLab4CF  David Orthman, PhD How can BlockChain facilitate Pharmaceutical companies go-to-market strategy? The greatest barrier to doing business is inertia. […]

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Cure-E-Us: World Orphan Drug Congress Part 2

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  The Initial Industry CFTR Screen Programs consisted of Epix, Genzyme, Galapagos, Fold, Amri, Aurora, and CombinatoRx Preston Campbell the […]

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Survey: Future Casting for our Cystic Fibrosis Community! (Updates)

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Thanks to 860 participants for taking our survey at www.cftechnology.org. A survey can be a tool to future cast!  and […]

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Blockchain, Cystic Fibrosis and Linnia

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I want you all to know we are looking into the Blockchain company Ethereum and this email suggests we have […]

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Gratitude! Remembering Blake’s example!

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We all can reach back in our memories and think of something or someone who made a difference and just […]

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An Interview: Jeanne Barnett and RXDigitalMarketing

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Buddy Scalera of RXDigital Marketing interviewed Jeanne Barnett (founder of CysticFibrosis.com) on August 31, 2017. If you are curious about […]

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New on Cystic Fibrosis Social Media (@knowCF)

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What’s new on the Cystic Fibrosis social media pages (@KnowCF)? We are active on social media – want to know […]

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Tamika Grubbs RN Here to Help our Cystic Fibrosis Community!

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Hello, my name is Tamika Grubbs and I am a CF nurse consultant with over 4 years of experience. In […]

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Fertile Areas for Experimentation: a New App for Cystic Fibrosis!

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One of our Cystic Fibrosis Digital Opinion Leaders speak about the need for an app that could help patients record […]

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