PGCFT
AdheranceLiving With CFResearchTechnology

Evolution of a New App for CF

Behind The Scenes With A New App For Managing Your CF By Jeanne Barnett, founder of CysticFibrosis.com In my 21 years of operating CysticFibrosis.com and from reading over two million messages in our forums, I’ve learned that CF patients generate fascinating data that is valuable to other patients, caregivers, doctors, …

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heart fibrosis
Living With CFResearchTreatments

Pulmozyme May Extend Lives of People Without CF

Pulmozyme might be able to extend the lives of people who don’t have CF according to a recent article in Science Daily, “Fighting age-related fibrosis to keep organs young.” Since it was approved by the FDA in 1993, Pulmozyme (dornase alpha or DNase) has been used by many people with …

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DNA CRISPR
GeneticsLiving With CFResearchTechnology

Radio Interview: CRISPR Gene Editing

“There has never been a more powerful biological tool or one with more potential to both improve the world and endanger it.” For an in-depth look at the progress being made and the potential of CRISPR, the gene editing tool, listen to this radio interview on National Public Radio. Cystic …

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PGCFT
Living With CFNews & EventsResearchTechnology

Portable Genomics and CFTechnology.org Partnership

From PRNewswire Portable Genomics and CFTechnology.org have entered into a partnership to enable cystic fibrosis patients to better collect, manage and share important biometrics with caregivers, researchers and the pharmaceutical industry News provided by Portable Genomics Jan 17, 2017, 06:04 ET SAN DIEGO, Jan. 17, 2017 /PRNewswire/ — Portable Genomics …

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Living With CFResearchRespiratory Disease

CF Lung Microbiome: Diversity and Lung Function

The article, The Lung Microbiome and Airway Disease, published September 2016 in the Annals of the American Thoracic Society, describes various research studies that analyzed the relationship between the lung microbiome and airway disease. Scientists can now better examine microbial communities in the lungs, and they are looking at how …

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Living With CFResearchRespiratory DiseaseTreatments

CFTR Function and Cigarette Smoke

Scientists are looking at how the CFTR potentiator, Ivacaftor, might be used in COPD, specifically chronic bronchitis. They found that cigarette smoking reduces CFTR activity in lung tissue, and that exposing the lung cells directly to a CFTR potentiator reverses this effect. While the vast majority of people with CF …

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Gel Caps
Living With CFResearch

High Levels of Vitamin D Supplements May Help Improve Lung Function in CF Patients, Study Shows

This interesting pilot study examined the impact of vitamin D on Cystic Fibrosis patients’ lung function. In addition to the known importance of adequate Vitamin D on bone health, Vitamin D may play an important role in lung function, due to its effects on the immune system. The study also …

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3dprotein
GeneticsLiving With CFResearch

First Structural Map of Cystic Fibrosis Protein

First structural map of cystic fibrosis protein sheds light on how mutations cause disease Scientists from Rockefeller University have created the first three-dimensional map of the protein responsible for cystic fibrosis, an inherited disease for which there is no cure. This achievement offers the kinds of insights essential to better …

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photo of Staph bacteria from NIH (public domain)
Living With CFResearchRespiratory Disease

The Lung Microbiome and Dysbiosis

The “microbiome” is a hot topic in respiratory medicine, with researchers from diverse fields such as chronic obstructive pulmonary disease, bronchiectasis, pulmonary fibrosis, and lung transplantation seeking to use the newly accessible technology of bacterial ribosomal RNA sequencing and related technologies to characterize airway bacterial communities and to determine the …

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Living With CFResearchRespiratory DiseaseVideo

Webinar: Infection Prevention During Bronchoscopy

Laurence Muscarella Ph.D. and Atul Mehta M.D.   Webinar Highlights: The latest research into bronchoscope cross-contamination issues Most frequent causes of infection risks Most importantly:  what everyone who uses bronchoscope should kow to prevent risks Webinar

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