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GeneticsLiving With CFResearch

First Structural Map of Cystic Fibrosis Protein

First structural map of cystic fibrosis protein sheds light on how mutations cause disease Scientists from Rockefeller University have created the first three-dimensional map of the protein responsible for cystic fibrosis, an inherited disease for which there is no cure. This achievement offers the kinds of insights essential to better …

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photo of Staph bacteria from NIH (public domain)
Living With CFResearchRespiratory Disease

The Lung Microbiome and Dysbiosis

The “microbiome” is a hot topic in respiratory medicine, with researchers from diverse fields such as chronic obstructive pulmonary disease, bronchiectasis, pulmonary fibrosis, and lung transplantation seeking to use the newly accessible technology of bacterial ribosomal RNA sequencing and related technologies to characterize airway bacterial communities and to determine the …

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Living With CFResearchRespiratory DiseaseVideo

Webinar: Infection Prevention During Bronchoscopy

Laurence Muscarella Ph.D. and Atul Mehta M.D.   Webinar Highlights: The latest research into bronchoscope cross-contamination issues Most frequent causes of infection risks Most importantly:  what everyone who uses bronchoscope should kow to prevent risks Webinar

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Living With CFNews & EventsResearch

North American Cystic Fibrosis Conference 2016

The 30th annual North American Cystic Fibrosis Conference was this October in Orlando, FL and offered more more than 60 sessions on topics related to CF. It was attended by physicians, research scientists, nurses, respiratory and physical therapists, social workers and pharmacists and more. The summary from the session called, …

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Living With CFResearchSurvey

Thank YOU! This research is complete!

All of the goals were met in 20 hours!   This community loves to be part of research. Thank you! Research Opportunities! $40.00 Gift Card to Complete On-Line Research This research opportunity involved 5-17 year old on Pulmozyme. It was for both patients and caregivers.    

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AdheranceLiving With CFResearchTechnology

Bluetooth-enabled Tech Shows Promise for Adherence and Lung Health

A device to monitor inhaled antibiotic use by CF patients and transmit the information to doctors via Bluetooth technology resulted in improved adherence and lung function in a pilot study from Ventura County Medical Center in Ventura, California. Reported in a press release from the journal Chest this month: For …

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Living With CFResearchRespiratory Disease

Copper in Hospitals to Limit Cross-Infection

Using copper on high-touch surfaces in hospitals may reduce Hospital-Acquired-Infections, according to a report published in the American Journal of Infection Control. The New York Times article describing this report says: …on average, fixtures in copper-equipped rooms had concentrations of bacteria about 98 percent lower than in rooms furnished with …

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Living With CFResearchRespiratory Disease

Distinguishing Relapse from Reinfection in MAC

In the News A study was published this month in the Annals of the American Thoracic Society (ATS) that looked at the differences between relapse of infection and a reinfection of the lungs by Mycobacterium avium complex (MAC). The study was not done with CF patients, however, the findings may …

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Clinical TrialsLiving With CFResearchTechnology

Drug Development Pipeline for Cystic Fibrosis treatment

The CFF has a interesting and easy to use Drug Development Pipeline webpage which shows the stages of medication that is being developed for Cystic Fibrosis treatment. The stage of development of each medication is clearly indicated and the medications are divided into categories of therapeutic approach. The categories are: Restore CFTR …

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Living With CFNews & EventsResearchRespiratory Disease

Barnyard Dust and Preventing Asthma in Children (one of many Cystic Fibrosis symptoms)

People with cystic fibrosis have infection and inflammation in their lungs, and some also have problems with asthma, making asthma one of the many cystic fibrosis symptoms that patients experience. From the CDC: the prevalence of asthma in the general population of the U.S. is 7-9%, and as many as …

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