bluetooth
AdheranceLiving With CFResearchTechnology

Bluetooth-enabled tech shows promise for adherence in Cystic Fibrosis treatment

A device that monitors inhaled antibiotic use in Cystic Fibrosis treatment, and transmits the information to doctors via Bluetooth technology resulted in improved adherence and lung function in a pilot study from Ventura County Medical Center in Ventura, California. Reported in a press release from the journal Chest this month: …

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copper
Living With CFResearchRespiratory Disease

Copper in Hospitals to Limit Cross-Infection

The use of copper in hospital rooms, may reduce cross-infection, a common concern in cystic fibrosis centers. Using copper on high-touch surfaces in hospitals may reduce Hospital-Acquired-Infections, according to a report published in the American Journal of Infection Control. The New York Times article describing this report says: …on average, …

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mac
Living With CFResearchRespiratory Disease

Distinguishing Relapse from Reinfection in MAC

MAC is a non-tuberculosis mycobacterium (NTM). It is found everywhere in the environment, and since the 1990s has been increasingly found in people with Cystic Fibrosis. In the News A study was published this month in the Annals of the American Thoracic Society (ATS) that looked at the differences between …

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Clinical TrialsLiving With CFResearchTechnology

Drug Development Pipeline for Cystic Fibrosis treatment

The CFF has a interesting and easy to use Drug Development Pipeline webpage which shows the stages of medication that is being developed for Cystic Fibrosis treatment. The stage of development of each medication is clearly indicated and the medications are divided into categories of therapeutic approach. The categories are: Restore CFTR …

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Living With CFNews & EventsResearchRespiratory Disease

Barnyard Dust and Preventing Asthma in Children (one of many Cystic Fibrosis symptoms)

People with cystic fibrosis have infection and inflammation in their lungs, and some also have problems with asthma, making asthma one of the many cystic fibrosis symptoms that patients experience. From the CDC: the prevalence of asthma in the general population of the U.S. is 7-9%, and as many as …

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sputum cup
Living With CFResearchRespiratory DiseaseTreatments

New Antibiotic Discovered in our Noses could help treat Staph and MRSA

Staphylococcus lugdunensis, a bacteria that kills staph and MRSA, could someday add to the arsenal of weapons that help people with Cystic Fibrosis. Why do some people carry Staphylococcus aureus bacteria in their noses and others don’t? Scientists at the University of Tübingen in Germany asked this question, and they found …

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Probiotics and Prebiotics
FAQsGastrointestinal DiseaseLiving With CFNutritionResearch

Probiotics and Prebiotics in Food – benefits in the cystic fibrosis diet

PROBIOTICS yogurt kefir milk buttermilk soy/nut milks fermented soft cheeses (also gouda, cheddar, swiss, parmesan) kombucha tea sauerkraut (unpasteurized) kimchi miso soup tempeh sourdough bread olives sour pickles (not pickles made in vinegar) PREBIOTICS leeks asparagus chicory Jerusalem artichokes kale (and other dark leafy greens) garlic onions whole grains (barley, …

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Gastrointestinal DiseaseLiving With CFNutritionResearch

Intestinal Bacteria in Research Articles: immune system and digestion

Earlier this month, the article by LittleLab4CF, Fecal Microbial Transplants and the book “Gut” discussed the importance of having and feeding the right bacteria in our GI tracts. Our gut bacteria influences our immune systems, the comfort/pain level we have when digesting foods, and our ability to extract nutrients from …

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ATS article global warming
Living With CFResearchRespiratory Disease

Climate Change and Respiratory Infections (cystic fibrosis symptoms)

A recent article in the journal of the American Thoracic Society looks at how climate change is influencing respiratory infections. The authors describe studies that have shown a connection between weather events and shifting respiratory disease levels in the general populations, but more significantly in children and the elderly. The …

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firstword
Living With CFResearchTechnology

Cystic Fibrosis Patients and Caregivers Becoming Experts in the Digital Arena

The April issue of FirstWord, an online journal for pharmaceutical professionals, features an article highlighting our Cystic Fibrosis community here at CysticFibrosis.com, “New KOL Engagement: Building Relationships with the Digital KOL Generation.” One of the main ideas of the article is that expert patients and caregivers, Key Opinion Leaders or …

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