sputum cup
Living With CFResearchRespiratory DiseaseTreatments

New Antibiotic Discovered in our Noses

Why do some people carry Staphylococcus aureus bacteria in their noses and others don’t? Scientists at the University of Tübingen in Germany asked this question, and they found that people without Staphylococcus Aureus (about 70% of the population) have a different bacteria — Staphylococcus lugdunensis — in their noses that kills …

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Probiotics and Prebiotics
FAQsGastrointestinal DiseaseLiving With CFNutritionResearch

Probiotics and Prebiotics in Food

PROBIOTICS yogurt kefir milk buttermilk soy/nut milks fermented soft cheeses (also gouda, cheddar, swiss, parmesan) kombucha tea sauerkraut (unpasteurized) kimchi miso soup tempeh sourdough bread olives sour pickles (not pickles made in vinegar) PREBIOTICS leeks asparagus chicory Jerusalem artichokes kale (and other dark leafy greens) garlic onions whole grains (barley, …

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Gastrointestinal DiseaseLiving With CFNutritionResearch

Intestinal Bacteria in Research Articles

Earlier this month, the article by LittleLab4CF, Fecal Microbial Transplants and the book “Gut” discussed the importance of having and feeding the right bacteria in our GI tracts. Our gut bacteria influences our immune systems, the comfort/pain level we have when digesting foods, and our ability to extract nutrients from …

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ATS article global warming
Living With CFResearchRespiratory Disease

Climate Change and Respiratory Infections

A recent article in the journal of the American Thoracic Society looks at how climate change is influencing respiratory infections. The authors describe studies that have shown a connection between weather events and shifting respiratory disease levels in the general populations, but more significantly in children and the elderly. The …

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firstword
Living With CFResearchTechnology

Patients and Caregivers Becoming Experts in the Digital Arena

The April issue of FirstWord, an online journal for pharmaceutical professionals, features an article highlighting our community here at CysticFibrosis.com, “New KOL Engagement: Building Relationships with the Digital KOL Generation.” One of the main ideas of the article is that expert patients and caregivers, Key Opinion Leaders or KOLs, should …

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otoscope
Living With CFResearchTechnology

Early Warning for Hearing Loss

With the help of a 3D printer and just $6.42 in parts, anybody can turn a smartphone into a low budget otoscope and take photos of the inner ear that can uncover problems in the making. Robert Hunt and Tessa Bronez, who both graduated with degrees in Biomedical Engineering this …

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Character
Living With CFResearchVideo

The Science of Character

The Science of Character (8 mins) explores the neuroscience and social science that proves that we can shape who we are, and who we want to be. Learn More…

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GeneticsLiving With CFResearch

When a Bad Animal Model is Good: Cystic Fibrosis

A “good” animal model is one that has the same symptoms of a disease that we do, right? Not always. Sometimes we can actually learn more when an animal is not a perfect model; their good health can reveal new points of intervention. That’s the case for cystic fibrosis (CF), …

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superhero
GeneticsLiving With CFNews & EventsResearch

SuperHero DNA

Study finds individuals immune to severe diseases. A new study has found that certain people’s genes have evolved in such a way that they are immune to certain severe inherited conditions. The study involved the analysis of previously collected DNA sets totaling 589,306 genomes from around the world with researchers hoping …

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survey
Living With CFResearchSurvey

Survey of CF Patients by GeneFo

As reported on the website Cystic Fibrosis News Today, GeneFo, the online platform for organizing different chronic disease communities, surveyed 2,400 people with CF. The questions they asked included: How are you feeling today? Depressed (39%) and Tired (34%) were top answers. What is your preferred calorie booster? Meat (37%) …

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