photo of Staph bacteria from NIH (public domain)
Living With CFResearchRespiratory Disease

The Lung Microbiome and Dysbiosis

The “microbiome” is a hot topic in respiratory medicine, with researchers from diverse fields such as chronic obstructive pulmonary disease, bronchiectasis, pulmonary fibrosis, and lung transplantation seeking to use the newly accessible technology of bacterial ribosomal RNA sequencing and related technologies to characterize airway bacterial communities and to determine the …

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Living With CFResearchRespiratory DiseaseVideo

Webinar: Infection Prevention During Bronchoscopy

Laurence Muscarella Ph.D. and Atul Mehta M.D. A detailed webinar (71:30 minutes) can be viewed online. Highlights: The latest research into bronchoscope cross-contamination issues. Most frequent causes of infection risks Most importantly:  what everyone who uses bronchoscope should know to prevent risks Click to view the Webinar    

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Living With CFNews & EventsResearch

North American Cystic Fibrosis Conference 2016

The 30th annual North American Cystic Fibrosis Conference took place in October 2016 in Orlando, FL and offered more more than 60 sessions on topics related to CF. It was attended by physicians, research scientists, nurses, respiratory and physical therapists, social workers and pharmacists and more. The summary from the session …

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Living With CFResearchSurvey

Thank YOU! This research is complete!

All of the goals were met in 20 hours!   This community loves to be part of research. Thank you! Research Opportunities! $40.00 Gift Card to Complete On-Line Research This research opportunity involved 5-17 year old on Pulmozyme. It was for both patients and caregivers.    

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AdheranceLiving With CFResearchTechnology

Bluetooth-enabled tech shows promise for adherence in Cystic Fibrosis treatment

A device that monitors inhaled antibiotic use in Cystic Fibrosis treatment, and transmits the information to doctors via Bluetooth technology resulted in improved adherence and lung function in a pilot study from Ventura County Medical Center in Ventura, California. Reported in a press release from the journal Chest this month: …

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Living With CFResearchRespiratory Disease

Copper in Hospitals to Limit Cross-Infection

The use of copper in hospital rooms, may reduce cross-infection, a common concern in cystic fibrosis centers. Using copper on high-touch surfaces in hospitals may reduce Hospital-Acquired-Infections, according to a report published in the American Journal of Infection Control. The New York Times article describing this report says: …on average, …

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Living With CFResearchRespiratory Disease

Distinguishing Relapse from Reinfection in MAC

MAC is a non-tuberculosis mycobacterium (NTM). It is found everywhere in the environment, and since the 1990s has been increasingly found in people with Cystic Fibrosis. In the News A study was published this month in the Annals of the American Thoracic Society (ATS) that looked at the differences between …

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Clinical TrialsLiving With CFResearchTechnology

Drug Development Pipeline for Cystic Fibrosis treatment

The CFF has a interesting and easy to use Drug Development Pipeline webpage which shows the stages of medication that is being developed for Cystic Fibrosis treatment. The stage of development of each medication is clearly indicated and the medications are divided into categories of therapeutic approach. The categories are: Restore CFTR …

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Living With CFNews & EventsResearchRespiratory Disease

Barnyard Dust and Preventing Asthma in Children (one of many Cystic Fibrosis symptoms)

People with cystic fibrosis have infection and inflammation in their lungs, and some also have problems with asthma, making asthma one of the many cystic fibrosis symptoms that patients experience. From the CDC: the prevalence of asthma in the general population of the U.S. is 7-9%, and as many as …

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Living With CFResearchRespiratory DiseaseTreatments

New Antibiotic Discovered in our Noses could help treat Staph and MRSA

Staphylococcus lugdunensis, a bacteria that kills staph and MRSA, could someday add to the arsenal of weapons that help people with Cystic Fibrosis. Why do some people carry Staphylococcus aureus bacteria in their noses and others don’t? Scientists at the University of Tübingen in Germany asked this question, and they found …

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