2016-08-31 18.55.51
Living With CFRespiratory DiseaseTechnology

A New Tool for CF Lung Monitoring

Ultrashort Echo-Time MRI has been shown in a recent study, published last week in the Annals of the American Thoracic Society, to be comparable to computerized tomography (CT scanning) in measuring CF lung disease. This is excellent news as it offers a tool that is precise and detailed like CT, …

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Living With CFNews & EventsResearchRespiratory Disease

Barnyard Dust and Preventing Asthma in Children (one of many Cystic Fibrosis symptoms)

People with cystic fibrosis have infection and inflammation in their lungs, and some also have problems with asthma, making asthma one of the many cystic fibrosis symptoms that patients experience. From the CDC: the prevalence of asthma in the general population of the U.S. is 7-9%, and as many as …

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Living With CFResearchRespiratory DiseaseTreatments

New Antibiotic Discovered in our Noses

Why do some people carry Staphylococcus aureus bacteria in their noses and others don’t? Scientists at the University of Tübingen in Germany asked this question, and they found that people without Staphylococcus Aureus (about 70% of the population) have a different bacteria — Staphylococcus lugdunensis — in their noses that kills …

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Living With CFResearchRespiratory Disease

Climate Change and Respiratory Infections

A recent article in the journal of the American Thoracic Society looks at how climate change is influencing respiratory infections. The authors describe studies that have shown a connection between weather events and shifting respiratory disease levels in the general populations, but more significantly in children and the elderly. The …

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Living With CFRespiratory DiseaseTechnology

SpiroCall: Lung Function Measured by Phone

Computer scientists and engineers at the University of Washington have developing SpiroCall, a tool that can measure lung function through a phone – any phone – including smartphones, flip-phones, landlines or payphones. From the article in Scientific News Today: A paper to be presented in May at the Association for …

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FAQsLiving With CFRespiratory DiseaseTreatments

Mayo Clinic and Chronic Sinusitis

From the Mayo Clinic: Treatments to relieve symptoms Your doctor may recommend treatments to help relieve sinusitis symptoms. These include: Saline nasal irrigation, which you spray into your nose to rinse your nasal passages. Nasal corticosteroids. These nasal sprays help prevent and treat inflammation. Examples include fluticasone (Flonase), budesonide (Rhinocort …

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Living With CFRespiratory DiseaseTechnology

Better Lung Scanning Technology

New scanning technology which will give a much clearer picture of lung disease has taken a major step forward thanks to scientists at The University of Nottingham. The experts at the Sir Peter Mansfield Imaging Centre have developed a process using specially treated krypton gas as an inhalable contrast agent …

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Living With CFRespiratory DiseaseTechnology

Xbox Kinect to Monitor Lung Function

Researchers in the UK are developing technology for enhanced spirometry with 3-D imaging using four Microsoft Xbox Kinect devices. This technology assesses lung function and chest wall movement, and might also be useful in testing medication efficacy and changes in respiration during exercise. From the article in Forbes magazine: In …

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GeneticsLiving With CFRespiratory DiseaseTreatments

How cystic fibrosis promotes lung infections

From the NIH At a Glance Scientists discovered how cystic fibrosis raises the risk for lung infections. The findings also identify a novel potential therapeutic target. Cystic fibrosis is an inherited disorder that results in a buildup of thick and sticky mucus in the lungs, airways, and other organs. Excess …

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Living With CFResearchRespiratory DiseaseTreatments

Concert Pharma’s Modified Version of Cystic Fibrosis Therapy Ivacaftor Outperforms Kalydeco in Early Testing

Written by Patricia Inacio, PhD Source: Cystic Fibrosis News Today Concert Pharma recently announced successful results from a Phase 1 single ascending dose clinical trial for their lead investigational drug CTP-656 as a therapy for cystic fibrosis. Cystic fibrosis is a life-threatening disease characterized by a progressive lung function decline and is caused …

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