Digital Spirometry and the Cystic Fibrosis patient
For Cystic Fibrosis, the spirometry test given by the clinic is a very important measurement. From Wikipedia we learn: “Spirometry […]
An App for Cystic Fibrosis to bring Data to Market
Update on our app for Cystic Fibrosis: the pilot study We are getting ready for our Pilot Study: 20 patients […]
Tamika Grubbs RN Here to Help our Cystic Fibrosis Community!
Hello, my name is Tamika Grubbs and I am a CF nurse consultant with over 4 years of experience. In […]
Fertile Areas for Experimentation: a New App for Cystic Fibrosis!
One of our Cystic Fibrosis Digital Opinion Leaders speak about the need for an app that could help patients record […]
The Data Will See You Now! and Cystic Fibrosis Data is Valuable!
I was invited to speak at the PanagoraPharma Conference on Mobile Technology on June 28, 2017. I arrived first thing […]
University of British Columbia studying B-cepacia with some success!
Burkholderia cenocepacia has been a very hard to treat bacterial infection for our Cystic Fibrosis community. Some of you may […]
Evolution of a New App for Cystic Fibrosis management
Behind The Scenes With A New App For Managing Your Cystic Fibrosis By Jeanne Barnett, founder of CysticFibrosis.com In my […]
Cystic Fibrosis Genetics: First Structural Map of Cystic Fibrosis Protein
First structural map of the cystic fibrosis protein sheds light on how mutations cause disease. This article highlights this recent […]
Make Friends with your Legislators! Tell them about Cystic Fibrosis.
Especially for Cystic Fibrosis, how the government acts on the Accountable Care Act (ObamaCare) does make a difference! Since Healthcare […]
Webinar: Infection Prevention During Bronchoscopy
Laurence Muscarella Ph.D. and Atul Mehta M.D. A detailed webinar (71:30 minutes) can be viewed online. Highlights: The latest research […]