University of British Columbia studying B-cepacia with some success!
Burkholderia cenocepacia has been a very hard to treat bacterial infection for our Cystic Fibrosis community. Some of you may […]
Risk of Hearing Loss from IV Aminoglycosides in Cystic Fibrosis
Cumulative exposure to IV tobramycin and amikacin, which are critical for treating cystic fibrosis infections, increases the risk of hearing […]
Indrepta C now available for nonsense mutations
Sharktank Research Foundation releases Indrepta C; a nutritional supplement targeted for nonsense mutations Sharktank Research Foundation announces promising news for […]
Treatment for Cystic Fibrosis: Vertex Acquires Concert’s CFTR Potentiator CTP-656
Vertex Pharmaceuticals recently purchased the Phase 2 cystic fibrosis potentiator drug CTP-656 from Concert Pharmaceuticals. The deal is estimated to […]
Respiratory Health and Air Pollution
The impact of small particle air pollution on the lower airways (lungs) has long been studied, but now scientists have […]
Does Ivacaftor Affect Lung Bacteria in Cystic Fibrosis?
Ivacaftor has been shown to increase CFTR activity and lung function in people with Cystic Fibrosis and the G551D mutation, […]
New on our Cystic Fibrosis Social Media (@knowcf)
We are active on social media – want to know the latest news? Please follow the links to see what […]
Research on CF and Exercise in Cystic Fibrosis treatment
Significant research, both recent and decades old, shows that exercise helps people with CF. Yet it’s not always a part […]
Evolution of a New App for Cystic Fibrosis management
Behind The Scenes With A New App For Managing Your Cystic Fibrosis By Jeanne Barnett, founder of CysticFibrosis.com In my […]
Pulmozyme May Extend Lives of People Without Cystic Fibrosis
Pulmozyme might be able to extend the lives of people who don’t have CF according to a recent article in […]