It’s a Marathon Not a Sprint – by Nicholas Breton
Approximately 10 years ago, my mother had called me on the phone frantically telling me she had seen a news […]
How Breathwork Can Help Cystic Fibrosis
Deprived of a Beneficial Therapy? Although I’ve been in and out of hospitals since my diagnosis of Cystic Fibrosis at […]
DIY nebulizer sterilizer hack for Cystic Fibrosis treatments (member story)
**Note: this is not medical advice and this method has not been approved by any medical professionals or suppliers. It […]
A New Hope for CF! (Planetary Biosciences Review – Jan 2018)
To brighten this post up, I will review the exciting supplements Indrepta and TauriNAC using Star Wars parlance… I’m a […]
D3forME Transdermal Vitamin D Patch: do you qualify?
Learn more about the eligibility criteria and how to apply for the D3forMe Transdermal Vitamin D patch through Healthwell’s Cystic […]
Orkambi has simply changed my life…a Cystic Fibrosis reflection
A member of our community with Cystic Fibrosis reflects on two years since starting Orkambi, a medication used to treat […]
Lung Clearance Index Improved in Children Ages 6-11 on Ivacaftor/Lumacaftor
Ivacaftor/Lumacaftor Improves Lung Clearance Index Score In Children A new phase 3 study, led by The Hospital for Sick Children […]
Outcomes and Tolerances in Cystic Fibrosis Treatment Lumacaftor/Ivacaftor
Last month, the results of a study were published that looked at the progress and side effects of the cystic […]
New on Cystic Fibrosis Social Media (@knowCF)
What’s new on the Cystic Fibrosis social media pages (@KnowCF)? We are active on social media – want to know […]
Orkambi Study On Children Age 6-12 With DDF508: Cystic Fibrosis Treatment
Results are in from a 24-week study of Orkambi (lumacaftor/ivacaftor – a medication used in cystic fibrosis treatment) in 58 children […]