An App for Cystic Fibrosis to bring Data to Market
An App for Cystic Fibrosis to bring Data to Market
Update on our app for Cystic Fibrosis: the pilot study We are getting ready for our Pilot Study: 20 patients […]
Tamika Grubbs RN Here to Help our Cystic Fibrosis Community!
Hello, my name is Tamika Grubbs and I am a CF nurse consultant with over 4 years of experience. In […]
New on Cystic Fibrosis Social Media (@knowCF)
What’s new on the Cystic Fibrosis social media pages (@KnowCF)? We are active on social media – want to know […]
Fertile Areas for Experimentation: a New App for Cystic Fibrosis!
One of our Cystic Fibrosis Digital Opinion Leaders speak about the need for an app that could help patients record […]
The Data Will See You Now! and Cystic Fibrosis Data is Valuable!
I was invited to speak at the PanagoraPharma Conference on Mobile Technology on June 28, 2017. I arrived first thing […]
Home Monitoring vs. Traditional Care in CF: Year-Long Study Results
A study of home monitoring vs. traditional cystic fibrosis care in 267 patients age fourteen and older showed that after […]
What is Cystic Fibrosis – Infographic
What is Cystic Fibrosis? View this handy infographic which explains, in a summarized format, what Cystic Fibrosis is, including symptoms, genetics, […]
Amber’s Cystic Fibrosis Miracle
Introduction My name is Amber Newman and I’m twenty-five years old, soon to be twenty-six. I was diagnosed with CF […]
Lung Clearance Index Improved in Children Ages 6-11 on Ivacaftor/Lumacaftor
Ivacaftor/Lumacaftor Improves Lung Clearance Index Score In Children A new phase 3 study, led by The Hospital for Sick Children […]
Enchilada Casserole Anti-inflammatory Recipe (Cystic Fibrosis diet)
Recipe submitted by Ashlee