Equal Access to Treatment for All with Cystic Fibrosis in the US?
Equal Access to Treatment for All with Cystic Fibrosis in the US?
Just in from Tamika Grubbs: Cystic Fibrosis is the same disease for at least 30,000 people in the united states […]
An Interview: Jeanne Barnett and RXDigitalMarketing
Buddy Scalera of RXDigital Marketing interviewed Jeanne Barnett (founder of CysticFibrosis.com) on August 31, 2017. If you are curious about […]
TauriNAC Now Available
This summer, Sharktank Research Foundation and Planetary Biosciences released a product called TauriNAC. It contains NAC (N-Acetylcysteine), taurine, magnesium, green […]
A Conversation with Gunnar Esiason
Gunnar Esiason is the son of retired American NFL quarterback, Norman (Boomer) Esiason. He is twenty-six years old and living […]
The Unidos pela Vida Institute – spreading knowledge about Cystic Fibrosis in Brazil
Join us today as we learn more about the Unidos pela Vida Institute for Cystic Fibrosis in Brazil. Thank you […]
A Brain, A Heart, Courage: the e-Patient community for Cystic Fibrosis
Back in 2010, Jeanne Barnett wrote about the e-patient, using the metaphor of the Wizard of Oz: it is still […]
D3forME Transdermal Vitamin D Patch: do you qualify?
Learn more about the eligibility criteria and how to apply for the D3forMe Transdermal Vitamin D patch through Healthwell’s Cystic […]
Orkambi has simply changed my life…a Cystic Fibrosis reflection
A member of our community with Cystic Fibrosis reflects on two years since starting Orkambi, a medication used to treat […]
Digital Spirometry and the Cystic Fibrosis patient
For Cystic Fibrosis, the spirometry test given by the clinic is a very important measurement. From Wikipedia we learn: “Spirometry […]
New on Cystic Fibrosis Social Media (@knowCF)
What’s new on the Cystic Fibrosis social media pages (@KnowCF)? We are active on social media – want to know […]