clinicaltrialsapp
Clinical TrialsLiving With CFTechnology

Matching Volunteers to Clinical Trials by App

  It takes on average 17 years for clinical breakthroughs in the laboratory to reach patients. A big part of the delay is finding enough patients to take part in clinical trials. Only 5 to 10 percent of eligible adults enroll—and of those who show initial interest, only 5 percent …

READ MORE →
firstword
Living With CFResearchTechnology

Cystic Fibrosis Patients and Caregivers Becoming Experts in the Digital Arena

The April issue of FirstWord, an online journal for pharmaceutical professionals, features an article highlighting our Cystic Fibrosis community here at CysticFibrosis.com, “New KOL Engagement: Building Relationships with the Digital KOL Generation.” One of the main ideas of the article is that expert patients and caregivers, Key Opinion Leaders or …

READ MORE →
otoscope
Living With CFResearchTechnology

New low budget otoscope for early warning of hearing loss

There are all manner of reasons why someone may be more prone to hearing loss. They include genetic factors, birth complications, ear infections, a reaction to drugs, aging and environmental factors. Cystic Fibrosis treatment often include high doses of medications that may increase the risk of hearing loss. We are …

READ MORE →
This cartoon is from
AllanAnalytics
Living With CFSupport

Looking for a career choice? What to study?

This is something new that may interest some of you creative entrepreneurs… Just in from Kent State in Ohio and I wonder how many other states and universities will be offering courses based on future inventions using the latest materials found in technology! A problem could be “Safety” in handling …

READ MORE →
loveandlogic
AdheranceLiving With CFParentingSupport

Parenting Children with Health Issues: From our Archives

This video was one of five presented on CysticFibrosis.com by Lisa Greene. Lisa is the mother of two children with CF. She is an excellent model of motherhood. Happy Mother’s Day! Salt and Light, Imogene

READ MORE →
Character
Living With CFResearchVideo

The Science of Character

The Science of Character (8 mins) explores the neuroscience and social science that proves that we can shape who we are, and who we want to be. Learn More…

READ MORE →
1920px-Ewe_sheep_black_and_white-150x150
GeneticsLiving With CFResearch

When a Bad Animal Model is Good: Cystic Fibrosis

A “good” animal model is one that has the same symptoms of a disease that we do, right? Not always. Sometimes we can actually learn more when an animal is not a perfect model; their good health can reveal new points of intervention. That’s the case for cystic fibrosis (CF), …

READ MORE →
superhero
GeneticsLiving With CFNews & EventsResearch

SuperHero DNA

Study finds individuals immune to severe diseases. A new study has found that certain people’s genes have evolved in such a way that they are immune to certain severe inherited conditions. The study involved the analysis of previously collected DNA sets totaling 589,306 genomes from around the world with researchers hoping …

READ MORE →
sinuses
FAQsLiving With CFRespiratory DiseaseTreatments

Cystic Fibrosis symptoms: Mayo clinic’s sinusitis treatment suggestions

For many patients, chronic sinusitis is a part of their many Cystic Fibrosis symptoms. From the Mayo Clinic, about sinusitis: The goal of treating chronic sinusitis is to: Reduce sinus inflammation Keep your nasal passages draining Eliminate the underlying cause Reduce the number of sinusitis flare-ups Treatments to relieve symptoms …

READ MORE →
lungs
Living With CFRespiratory DiseaseTechnology

Better Lung Scanning Technology

New scanning technology which will give a much clearer picture of lung disease has taken a major step forward thanks to scientists at The University of Nottingham. The experts at the Sir Peter Mansfield Imaging Centre have developed a process using specially treated krypton gas as an inhalable contrast agent …

READ MORE →