loveandlogic
AdheranceLiving With CFParentingSupport

Parenting Children with Health Issues: From our Archives

This video was one of five presented on CysticFibrosis.com by Lisa Greene. Lisa is the mother of two children with CF. She is an excellent model of motherhood. Happy Mother’s Day! Salt and Light, Imogene

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Character
Living With CFResearchVideo

The Science of Character

The Science of Character (8 mins) explores the neuroscience and social science that proves that we can shape who we are, and who we want to be. Learn More…

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GeneticsLiving With CFResearch

When a Bad Animal Model is Good: Cystic Fibrosis

A “good” animal model is one that has the same symptoms of a disease that we do, right? Not always. Sometimes we can actually learn more when an animal is not a perfect model; their good health can reveal new points of intervention. That’s the case for cystic fibrosis (CF), …

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superhero
GeneticsLiving With CFNews & EventsResearch

SuperHero DNA

Study finds individuals immune to severe diseases. A new study has found that certain people’s genes have evolved in such a way that they are immune to certain severe inherited conditions. The study involved the analysis of previously collected DNA sets totaling 589,306 genomes from around the world with researchers hoping …

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sinuses
FAQsLiving With CFRespiratory DiseaseTreatments

Cystic Fibrosis symptoms: Mayo clinic’s sinusitis treatment suggestions

For many patients, chronic sinusitis is a part of their many Cystic Fibrosis symptoms. From the Mayo Clinic, about sinusitis: The goal of treating chronic sinusitis is to: Reduce sinus inflammation Keep your nasal passages draining Eliminate the underlying cause Reduce the number of sinusitis flare-ups Treatments to relieve symptoms …

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lungs
Living With CFRespiratory DiseaseTechnology

Better Lung Scanning Technology

New scanning technology which will give a much clearer picture of lung disease has taken a major step forward thanks to scientists at The University of Nottingham. The experts at the Sir Peter Mansfield Imaging Centre have developed a process using specially treated krypton gas as an inhalable contrast agent …

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FinancialLiving With CFResourcesSupport

Individual Counseling Offered

jricci brings us this great news: Through a very generous contribution Financial Support for Individual Counseling Services are being offered to the CF Community! Read More: CFQoL_Counseling_Flyer_2016

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governmentteam
AdvocacyFinancialLiving With CF

Put your legislators on your team!

by: Peter S. Barnett PT, DPT, OCS In the USA… Do you know who your lawmakers are? To anyone who has an illness, and especially families dealing with Cystic Fibrosis; it matters that you know your lawmakers. Everything (Medicare/Medicaid/SSDI, Commercial Insurance, Premium Rates etc) about healthcare is connected to politicians. …

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itsbeenagoodlifedad1
Book Reviewsfeatured_memberLiving With CFVideo

It’s Been a Good Life Dad: My Son’s Struggle with Cystic Fibrosis

It’s Been a Good Life Dad: My Son’s Struggle with Cystic Fibrosis by Jerry E. Hendon Author Jerry Hendon writes: I have written a book about my son, Kevin, who died of cystic fibrosis in 1986 at age 18. The book, It’s Been a Good Life, Dad: My Son’s Struggle …

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3-d ears
Living With CFTechnologyTransplants

3D Printed Ear, Bone, and Muscle Tissue

It sounds like science fiction, but it’s not: 3D-printed human ear, bone, and muscle tissue have been implanted in lab rats and successfully grew their own blood vessel networks. We’ve been hearing about this for a few years now: different groups of researchers working on 3D-printing processes and materials that …

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