PGCFT
AdheranceLiving With CFResearchTechnology

Evolution of a New App for CF

Behind The Scenes With A New App For Managing Your CF By Jeanne Barnett, founder of CysticFibrosis.com In my 21 years of operating CysticFibrosis.com and from reading over two million messages in our forums, I’ve learned that CF patients generate fascinating data that is valuable to other patients, caregivers, doctors, …

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Living With CFTechnologyTreatments

A Day with Portable Genomics

  Using the Portable Genomics App   CFtechnology and Portable Genomics are proud to create a partnership using a new, customizable app! In the Digital Age, it is no surprise that apps are finding their way into the medical field. Technology is everywhere, so why not harness the power of …

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DNA CRISPR
GeneticsLiving With CFResearchTechnology

Radio Interview: CRISPR Gene Editing

“There has never been a more powerful biological tool or one with more potential to both improve the world and endanger it.” For an in-depth look at the progress being made and the potential of CRISPR, the gene editing tool, listen to this radio interview on National Public Radio. Cystic …

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PGCFT
Living With CFNews & EventsResearchTechnology

Portable Genomics and CFTechnology.org Partnership

From PRNewswire Portable Genomics and CFTechnology.org have entered into a partnership to enable cystic fibrosis patients to better collect, manage and share important biometrics with caregivers, researchers and the pharmaceutical industry News provided by Portable Genomics Jan 17, 2017, 06:04 ET SAN DIEGO, Jan. 17, 2017 /PRNewswire/ — Portable Genomics …

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artificial_pancreas2
Living With CFTechnologyTreatments

(Cystic Fibrosis Diabetes) First FDA approved artificial pancreas and other 2016 Digital health highlights

The “What We Learnt in Digital Health in 2016” article (by Bertalan Meskó, MD, PhD) takes a look at the successes, failures and challenges in the field of digital health in 2016 and provides an interesting view on some current trends. The first FDA-approved artificial pancreas is mentioned (which may be of interest …

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bluetooth
AdheranceLiving With CFResearchTechnology

Bluetooth-enabled Tech Shows Promise for Adherence and Lung Health

A device to monitor inhaled antibiotic use by CF patients and transmit the information to doctors via Bluetooth technology resulted in improved adherence and lung function in a pilot study from Ventura County Medical Center in Ventura, California. Reported in a press release from the journal Chest this month: For …

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lungs-37825_640
Living With CFTechnologyTransplants

Lung Bio-engineering Toronto to Maryland

EX VIVO LUNG PERFUSION During an organ transplant, time is of the essence and Ex Vivo Lung Perfusion is no different. Lungs are explanted, evaluated, and shipped as quickly as possible to our specialized EVLP facility. The EVLP team works around the clock to assess the lungs, share data with …

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mediq
AdheranceLiving With CFSupportTechnology

Med-IQ: Creating a Partnership for Adherence

We were recently contacted by Med-IQ, a company that educates CF medical professionals and patients and caregivers. We looked at their resources and felt the community here at cysticfibrosis.com might be interested in learning more from them. Med-IQ’s mission is “To deliver education that brings measurable change in healthcare professional …

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2016-08-31 18.55.51
Living With CFRespiratory DiseaseTechnology

A New Tool for CF Lung Monitoring

Ultrashort Echo-Time MRI has been shown in a recent study, published last week in the Annals of the American Thoracic Society, to be comparable to computerized tomography (CT scanning) in measuring CF lung disease. This is excellent news as it offers a tool that is precise and detailed like CT, …

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