TauriNAC Now Available
This summer, Sharktank Research Foundation and Planetary Biosciences released a product called TauriNAC. It contains NAC (N-Acetylcysteine), taurine, magnesium, green […]
A Conversation with Gunnar Esiason
Gunnar Esiason is the son of retired American NFL quarterback, Norman (Boomer) Esiason. He is twenty-six years old and living […]
A Brain, A Heart, Courage: the e-Patient community for Cystic Fibrosis
Back in 2010, Jeanne Barnett wrote about the e-patient, using the metaphor of the Wizard of Oz: it is still […]
Orkambi has simply changed my life…a Cystic Fibrosis reflection
A member of our community with Cystic Fibrosis reflects on two years since starting Orkambi, a medication used to treat […]
Digital Spirometry and the Cystic Fibrosis patient
For Cystic Fibrosis, the spirometry test given by the clinic is a very important measurement. From Wikipedia we learn: “Spirometry […]
New on Cystic Fibrosis Social Media (@knowCF)
What’s new on the Cystic Fibrosis social media pages (@KnowCF)? We are active on social media – want to know […]
Tamika Grubbs RN Here to Help our Cystic Fibrosis Community!
Hello, my name is Tamika Grubbs and I am a CF nurse consultant with over 4 years of experience. In […]
New on Cystic Fibrosis Social Media (@knowCF)
What’s new on the Cystic Fibrosis social media pages (@KnowCF)? We are active on social media – want to know […]
The Data Will See You Now! and Cystic Fibrosis Data is Valuable!
I was invited to speak at the PanagoraPharma Conference on Mobile Technology on June 28, 2017. I arrived first thing […]
Home Monitoring vs. Traditional Care in CF: Year-Long Study Results
A study of home monitoring vs. traditional cystic fibrosis care in 267 patients age fourteen and older showed that after […]