Medicare and Cystic Fibrosis
Learn more about how Medicare covers Cystic Fibrosis. Article written by Danielle K Roberts, a Medicare insurance expert at Boomer Benefits, where she […]
Cure-E-Us: World Orphan Drug Congress Part 2
The Initial Industry CFTR Screen Programs consisted of Epix, Genzyme, Galapagos, Fold, Amri, Aurora, and CombinatoRx Preston Campbell the […]
Does Medicare Cover Lung Transplants?
Learn more about how the various parts of Medicare pay for treatment before, during and after a Lung Transplant. Article written […]
Coping with the Loss of a Spouse from CF
Guest Blog We strive to be optimistic about life with CF, but loss of a loved one is a harsh […]
Cure-E-Us Where is our Survey Leading?
Of the 1112 participants for our survey “Discovery, Research, and Profit” www.CFTechnology.org only two claimed to be physicians! One from […]
Artificial Intelligence (AI)as told to Imogene by LittleLab4CF
Text by LittleLab4CF…helpful links added by Imogene. Big data was applied to the first human genome that involved many international […]
ENF Scholarship and CF summer research program applications now open
Applications for the Elizabeth Nash Foundation scholarship and summer CF research programs are now available. Please find relevant information […]
LittleLab4CF on the potential of an enormously valuable Genomic Diary
This blog was reproduced from a post by LittleLab4CF , a Super Moderator on the cysticfibrosis.com forum. “I found myself in a lively discussion […]
DIY nebulizer sterilizer hack for Cystic Fibrosis treatments (member story)
**Note: this is not medical advice and this method has not been approved by any medical professionals or suppliers. It […]
Fashion tips and favorite products for my Cystic Fibrosis body
With CF, unexpected body changes can make getting dressed in the morning a frustrating experience. Exhibit A: What size will […]