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About this blog

In addition to the forums, the cysticfibrosis.com site contains information on clinical trials, gene therapy, testing, associations, research, events and member blogs. View these by category/comments by using the filters below, or scroll down to view all the blog archives at a glance. Read our website disclaimer.
Raden Rositasari

Thank you so much for the foam roller! We received it yesterday. My son with CF is 14 and always has knots in his back, I never considered this for…

Rakhafi Adelio

I suffer from a mongentic disease alpha one antitrypsin deficiency will this ever be cured? We have no cure, just fight and many are fighting years , its a cruel…

Melissa75

Kay, Thank you for sharing your story. It would be wonderful if CRISPR could help you. I'm so sorry for all you're going through, and I hope you continue to…

stylecomfy

Hi Sarah, only a pleasure, I have passed on the message to the rest of our team. We hope he benefits from this, let us know how it goes :)

Sarah Delauder

Thank you so much for the foam roller! We received it yesterday. My son with CF is 14 and always has knots in his back, I never considered this for…

stylecomfy

UPDATE: The giveaway is now closed. Thank you for all the entries! Winners will be contacted via email.

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