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Large Scale CF survey on Personal Health and Wellness

January 9, 2021
38 0
AdvocacyLiving With CFNews & EventsSocial Media

Roche Virtual Summit Lauren Brenneman speaks Innovation and the CF community

July 6, 2020
452 24
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Tips on Taking Care of Your Lungs with COVID-19 (from a successful Cystic Fibrosis patient)

April 27, 2020
1.3k 41
Alternative MedicineLiving With CF

Anxiety in CF: Can CBD oil help?

February 2, 2020
748 10
APP for CFLiving With CF

CFTechnology and CreativeDestructionLab

October 3, 2019
545 23
Living With CF

Suggestions to Help You Manage Cystic Fibrosis at College

August 20, 2019
943 36
APP for CF

Imogene attends: Deep Tech Pharma Philadelphia April 10, 2019

April 12, 2019
582 1
APP for CFLiving With CF

Technology’s Place in the Lives of Patients with Cystic Fibrosis

March 16, 2019
995 1
featured_memberLiving With CFUncategorized

Gratitude: came in my inmail!

November 23, 2018
376 0
Living With CF

Going Back to School with Cystic Fibrosis (from our Archives)

September 8, 2018
1.1k 15
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A Conversation with Gunnar Esiason
21.5k September 12, 2017
Cystic Fibrosis genetics: Know Your CF Mutations
8.2k November 21, 2015
Indrepta C now available for nonsense mutations
5.7k March 17, 2017
What is Cystic Fibrosis – Infographic
5.2k June 21, 2017
CF Innovators: Blown Away
4.2k
Ten Hurdles to Cystic Fibrosis Patient Adherence
4.1k November 21, 2015
Imogene attends: Deep Tech Pharma Philadelphia April 10, 2019
582 April 12, 2019
Welcome to CFTechnology.org video
242 July 7, 2018
A New Model for Patient Engagement for Cystic Fibrosis Patients and Caregivers
254 July 7, 2018
SSDI for people with Cystic Fibrosis
1.6k July 2, 2018
CURE-E-US: Our CF community has an UNMET NEED (Part 3)
178 May 12, 2018
Medicare and Cystic Fibrosis
960 May 7, 2018
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MORE BLOGS, NEWS AND RESEARCH ARTICLES

Large Scale CF survey on Personal Health and Wellness
38 January 9, 2021
Roche Virtual Summit Lauren Brenneman speaks Innovation and the CF community
452 July 6, 2020
Tips on Taking Care of Your Lungs with COVID-19 (from a successful Cystic Fibrosis patient)
1.3k April 27, 2020
Anxiety in CF: Can CBD oil help?
748 February 2, 2020
CFTechnology and CreativeDestructionLab
545 October 3, 2019
Suggestions to Help You Manage Cystic Fibrosis at College
943 August 20, 2019
Imogene attends: Deep Tech Pharma Philadelphia April 10, 2019
582 April 12, 2019
Technology’s Place in the Lives of Patients with Cystic Fibrosis
995 March 16, 2019
Gratitude: came in my inmail!
376 November 23, 2018
Going Back to School with Cystic Fibrosis (from our Archives)
1.1k September 8, 2018
Why Cystic Fibrosis and Blockchain? by LittleLab4CF
305 August 29, 2018
LittleLab4CF (our own Geneticist with Cystic Fibrosis) Helps us Understand Pharma/Patients and Blockchain
228 August 26, 2018
Welcome to CFTechnology.org video
242 July 7, 2018
A New Model for Patient Engagement for Cystic Fibrosis Patients and Caregivers
254 July 7, 2018
SSDI for people with Cystic Fibrosis
1.6k July 2, 2018
CURE-E-US: Our CF community has an UNMET NEED (Part 3)
178 May 12, 2018
Medicare and Cystic Fibrosis
960 May 7, 2018
Cure-E-Us: World Orphan Drug Congress Part 2
50 May 5, 2018
Cure-E-Us: Imogene at the World Orphan Drug Conference 2018 Part 1
231 May 2, 2018
Does Medicare Cover Lung Transplants?
1.9k April 26, 2018
Coping with the Loss of a Spouse from CF
988 April 17, 2018
Cure-E-Us Where is our Survey Leading?
255 March 22, 2018
Artificial Intelligence (AI)as told to Imogene by LittleLab4CF
242 March 4, 2018
ENF Scholarship and CF summer research program applications now open
276 February 21, 2018
Stem cell transplants for lung regeneration – promising breakthrough in China
2k February 17, 2018
LittleLab4CF on the potential of an enormously valuable Genomic Diary
152 February 10, 2018
DIY nebulizer sterilizer hack for Cystic Fibrosis treatments (member story)
2.5k February 3, 2018
Fashion tips and favorite products for my Cystic Fibrosis body
933 January 31, 2018
Survey: Future Casting for our Cystic Fibrosis Community! (Updates)
99 January 29, 2018
A New Hope for CF! (Planetary Biosciences Review – Jan 2018)
2k January 23, 2018
Blockchain, Cystic Fibrosis and Linnia
493 January 17, 2018
What’s new on the Cystic Fibrosis social media pages (@KnowCF)?
263 January 10, 2018
Getting paid for all the work it takes being a patient or caregiver with Cystic Fibrosis
382 January 10, 2018
A letter from Dr Corey Nislow – the obligation to change the way research is done
320 December 30, 2017
Cure-E-Us…Cystic Fibrosis 2018!
1.2k December 29, 2017
A Young Mom is Exploring BlockChain Technology
293 December 9, 2017
Gratitude! Remembering Blake’s example!
121 November 15, 2017
Market Research for Pulmozyme Users: Gift Cards given for an on line interview.
568 November 3, 2017
Your Cystic Fibrosis Data is Valuable! Watch the Video…Take the Survey!
245 October 23, 2017
Equal Access to Treatment for All with Cystic Fibrosis in the US?
1.5k September 28, 2017
An Interview: Jeanne Barnett and RXDigitalMarketing
253 September 19, 2017
TauriNAC Now Available
3.1k September 13, 2017
A Conversation with Gunnar Esiason
21.5k September 12, 2017
The Unidos pela Vida Institute – spreading knowledge about Cystic Fibrosis in Brazil
278 September 12, 2017
A Brain, A Heart, Courage: the e-Patient community for Cystic Fibrosis
337 August 21, 2017
D3forME Transdermal Vitamin D Patch: do you qualify?
887 August 19, 2017
Orkambi has simply changed my life…a Cystic Fibrosis reflection
3.2k August 19, 2017
Digital Spirometry and the Cystic Fibrosis patient
836 August 4, 2017
New on Cystic Fibrosis Social Media (@knowCF)
149 August 3, 2017
An App for Cystic Fibrosis to bring Data to Market
319 July 24, 2017
Tamika Grubbs RN Here to Help our Cystic Fibrosis Community!
393 July 10, 2017
New on Cystic Fibrosis Social Media (@knowCF)
118 July 10, 2017
Fertile Areas for Experimentation: a New App for Cystic Fibrosis!
222 July 7, 2017
The Data Will See You Now! and Cystic Fibrosis Data is Valuable!
241 July 6, 2017
Home Monitoring vs. Traditional Care in CF: Year-Long Study Results
483 July 4, 2017
What is Cystic Fibrosis – Infographic
5.2k June 21, 2017
Amber’s Cystic Fibrosis Miracle
2.2k June 16, 2017
Lung Clearance Index Improved in Children Ages 6-11 on Ivacaftor/Lumacaftor
617 June 15, 2017
Enchilada Casserole Anti-inflammatory Recipe (Cystic Fibrosis diet)
1.6k June 6, 2017
Low carb Cauliflower Crust Pizza (Cystic Fibrosis diet)
378 June 6, 2017
Personal Indrepta Results
1.8k May 23, 2017
Outcomes and Tolerances in Cystic Fibrosis Treatment Lumacaftor/Ivacaftor
647 May 22, 2017
Potato Chip Cookies (Cystic Fibrosis diet)
2.8k May 22, 2017
Lemon Olive Oil Cake (Cystic Fibrosis Diet)
488 May 14, 2017
Bacon Chocolate Chip Cookies (Cystic Fibrosis Diet)
285 May 8, 2017
Creamy Grape Salad Recipe (Cystic Fibrosis diet)
387 May 8, 2017
Yogurt Gummies recipe (Cystic Fibrosis diet)
2.4k May 8, 2017
Cystic Fibrosis diet: Recipe Contest! Win one of 4 x $50 Gift Cards
534 May 1, 2017
New on Cystic Fibrosis Social Media (@knowCF)
134 April 30, 2017
Full-Fat Fermented Dairy May Cause Less Inflammation Than Regular Dairy
2.5k April 23, 2017
New drug (Thymosin alpha 1) discovery: potential for Cystic Fibrosis treatment
3.6k April 17, 2017
Indrepta C Lottery Winners
480 April 15, 2017
AbbVie scholarship for students with cystic fibrosis
509 April 8, 2017
New on Cystic Fibrosis Social Media (@knowCF)
161 April 4, 2017
Orkambi Study On Children Age 6-12 With DDF508: Cystic Fibrosis Treatment
1.1k April 2, 2017
hard to treat Burkholderia cenocepacia
University of British Columbia studying B-cepacia with some success!
484 March 29, 2017
Risk of Hearing Loss from IV Aminoglycosides in Cystic Fibrosis
598 March 26, 2017
Indrepta C now available for nonsense mutations
5.7k March 17, 2017
Treatment for Cystic Fibrosis: Vertex Acquires Concert’s CFTR Potentiator CTP-656
691 March 13, 2017
Respiratory Health and Air Pollution
601 March 7, 2017
Does Ivacaftor Affect Lung Bacteria in Cystic Fibrosis?
1k February 27, 2017
New on our Cystic Fibrosis Social Media (@knowcf)
103 February 26, 2017
Research on CF and Exercise in Cystic Fibrosis treatment
1.4k February 23, 2017
Evolution of a New App for Cystic Fibrosis management
1.1k February 20, 2017
heart fibrosis
Pulmozyme May Extend Lives of People Without Cystic Fibrosis
1.4k February 12, 2017
New Guidelines for Cystic Fibrosis Diagnosis
2.2k February 7, 2017
Cystic Fibrosis fundraiser: Support us through AmazonSmile at no additional cost to you
590 January 31, 2017
New on our Cystic Fibrosis Social Media (@knowcf)
155 January 29, 2017
Cystic Fibrosis treatment: Foam roller benefits – a member blog
1.5k January 29, 2017
A Day with Portable Genomics for Cystic Fibrosis management
220 January 24, 2017
Radio Interview: CRISPR Gene Editing (relevant to Cystic Fibrosis genetics)
517 January 21, 2017
Miracle Flights: free medically-related air travel for ill patients, including for Cystic Fibrosis treatment
923 January 13, 2017
Cystic Fibrosis Lung Microbiome: Diversity and Lung Function
500 January 11, 2017
CFTR Function and Cigarette Smoke
1,000 January 7, 2017
Potential benefits of honey in Cystic Fibrosis Treatment
3.1k January 2, 2017
(Cystic Fibrosis Diabetes) First FDA approved artificial pancreas and other 2016 Digital health highlights
1.2k December 26, 2016
Vitamin D Supplements May Help Improve Lung Function in Cystic Fibrosis
392 December 22, 2016
ORKAMBI® (Lumacaftor/Ivacaftor) latest news: Germany, Australia availability
376 December 19, 2016
Member post: goals and managing expectations with Cystic Fibrosis
444 December 16, 2016
Lumacaftor/Ivacaftor longer trial on Heterozygous F508del Cystic Fibrosis Patients
1.5k December 8, 2016
Think INSIDE the box for easier inhaled treatments – cystic fibrosis treatment
702 December 5, 2016
Cystic Fibrosis Genetics: First Structural Map of Cystic Fibrosis Protein
335 December 3, 2016
The Lung Microbiome and Dysbiosis
452 November 18, 2016
Make Friends with your Legislators! Tell them about Cystic Fibrosis.
240 November 16, 2016
Redesigning Prescription Medication Inserts
153 November 13, 2016
Webinar: Infection Prevention During Bronchoscopy
233 November 9, 2016
10 Ways to Help When a Friend is Diagnosed With a Chronic Disease
195 November 9, 2016
Flourescent Sensor is a new Low-Cost Tool for Cystic Fibrosis diagnosis
209 November 4, 2016
North American Cystic Fibrosis Conference 2016
384 November 2, 2016
Thank YOU! This research is complete!
289 October 28, 2016
Mom takes on Vertex CEO about pricey Cystic Fibrosis Treatment Drugs
275 October 26, 2016
Bluetooth-enabled tech shows promise for adherence in Cystic Fibrosis treatment
135 October 20, 2016
Lung Bio-engineering Clinical Trial may benefit cystic fibrosis patients
380 October 14, 2016
The Bible for Transplants: make data driven decisions about lung transplant
296 October 7, 2016
Copper in Hospitals to Limit Cross-Infection
225 October 5, 2016
Distinguishing Relapse from Reinfection in MAC
801 September 27, 2016
Rare Disease Patient Advocacy Summit
151 September 19, 2016
How Much Do Orphan Drugs Cost?
172 September 14, 2016
Survey Shows A Lot of People Save Leftover Painkillers
117 September 13, 2016
Med-IQ: Creating a Partnership for Adherence in Cystic Fibrosis treatment
181 September 8, 2016
13 year-old with Cystic Fibrosis is a Top Surfer in South Carolina
382 September 7, 2016
A New Tool for Cystic Fibrosis Lung Monitoring
370 August 31, 2016
Organ Donation – Surprising Facts
1.8k August 23, 2016
First Winner! Probiotic/Prebiotic Recipe Contest (Cystic Fibrosis diet)
308 August 15, 2016
Drug Development Pipeline for Cystic Fibrosis treatment
1.1k August 9, 2016
Barnyard Dust and Preventing Asthma in Children (one of many Cystic Fibrosis symptoms)
478 August 5, 2016
New Antibiotic Discovered in our Noses could help treat Staph and MRSA
246 July 28, 2016
Probiotics and Prebiotics in Food – benefits in the cystic fibrosis diet
1.6k July 6, 2016
Intestinal Bacteria in Research Articles: immune system and digestion
297 June 30, 2016
CRISPR Finds Mutated DNA and Is Okayed for Clinical Trial
649 June 24, 2016
Climate Change and Respiratory Infections (cystic fibrosis symptoms)
529 June 21, 2016
Survey Filled – Thank you!
284 June 16, 2016
Fecal Microbial Transplants and “Gut” by Guilia Enders
880 June 16, 2016
Bugs into Drugs: Beyond Fecal Transplants
118 June 16, 2016
DNA ‘cages’ deliver drugs with zap of light
70 June 13, 2016
Matching Volunteers to Clinical Trials by App
141 June 12, 2016
Understanding Pharma Controversies in the News
541 June 8, 2016
Cystic Fibrosis Patients and Caregivers Becoming Experts in the Digital Arena
275 June 2, 2016
New low budget otoscope for early warning of hearing loss
192 May 25, 2016
Looking for a career choice? What to study?
221 May 25, 2016
SpiroCall: Lung Function Measured by Phone
772 May 16, 2016
Cystic Fibrosis treatment: lung transplant facts and member experiences
2.4k May 13, 2016
Wabi Baby Steam Sterilizer Contest
967 May 9, 2016
Parenting Children with Health Issues: From our Archives
142 May 3, 2016
The Science of Character
76 April 30, 2016
Documentary: Sisters living with Cystic Fibrosis
790 April 27, 2016
When a Bad Animal Model is Good: Cystic Fibrosis
99 April 23, 2016
SuperHero DNA
388 April 21, 2016
Cystic Fibrosis testing: Genetic and Rare Diseases Information Center
303 April 20, 2016
Cystic Fibrosis symptoms: Mayo clinic’s sinusitis treatment suggestions
1k April 18, 2016
Better Lung Scanning Technology
94 April 16, 2016
Survey of Cystic Fibrosis Patients by GeneFo
362 April 13, 2016
Individual Counseling Offered
209 April 11, 2016
The Importance of Treating Depression in People with Cystic Fibrosis
254 April 6, 2016
Xbox Kinect to Monitor Lung Function
335 March 30, 2016
Social Security Disability Benefits for people with Cystic Fibrosis
1.9k March 24, 2016
In the News: Inhaled Levofloxacin & QIDP Designation
294 March 23, 2016
Cystic Fibrosis: Three pilates exercises that may increase breathing strength
1.4k March 16, 2016
Put your legislators on your team!
112 March 14, 2016
Surprising Benefits from CF Research
244 March 9, 2016
What is an Anti-Inflammatory Diet?
2.2k February 29, 2016
It’s Been a Good Life Dad: My Son’s Struggle with Cystic Fibrosis
759 February 27, 2016
3D Printed Ear, Bone, and Muscle Tissue
198 February 24, 2016
Financial: Your Questions from the 2015 Survey
176 February 23, 2016
Dr. Warren Warwick, The Bell Curve
822 February 20, 2016
UCSD’s 3D Printed Liver Cells Most Liver-like Yet
416 February 17, 2016
Enzymes – Frequently Asked Questions
495 February 15, 2016
Toddler Bubby, taking enzymes for Cystic Fibrosis treatment
571 February 15, 2016
Brene Brown on Empathy
194 February 12, 2016
Sharktank: Jim Caldwell
1.5k February 11, 2016
Your Questions on Nutraceuticals
528 February 11, 2016
How cystic fibrosis promotes lung infections
296 February 10, 2016
We Lobby
178 February 9, 2016
Featured: A Love Worth Giving
114 February 6, 2016
Cystic Fibrosis treatment: Hypertonic Saline Questions
4k February 4, 2016
YOUR DATA! Your Questions on Self Management
1.2k February 3, 2016
Trial results of Ivacaftor in Cystic Fibrosis children ages 2-5
349 January 22, 2016
Genome editing with CRISPR-Cas9
834 January 13, 2016
New to CysticFibrosis.com
492 November 23, 2015
Newly Diagnosed: What is Cystic Fibrosis
3k November 22, 2015
Cystic Fibrosis testing: Genetic testing and sweat test
1.9k November 22, 2015
A Conversation on Filing Taxes with Cystic Fibrosis
1.9k November 22, 2015
Cystic Fibrosis Resource and Information Needs Survey
223 November 22, 2015
Parenting Tips
447 November 22, 2015
Cystic Fibrosis symptoms: Asthma, Allergies & Green FAQ
2k November 22, 2015
Join the Community
422 November 21, 2015
Ten Hurdles to Cystic Fibrosis Patient Adherence
4.1k November 21, 2015
Personal Spirometry and the Cystic Fibrosis Patient
1.2k November 21, 2015
Cystic Fibrosis genetics: Know Your CF Mutations
8.2k November 21, 2015
Enzyme FAQs
246 November 20, 2015
CF Patient To Climb the UK’s Three Highest Mountains in 24 Hours
1.8k September 24, 2015
New cystic fibrosis drug has high potential, high cost
323 September 23, 2015
Lauren Brenneman – Hartford Hospital cystic fibrosis case study
2.1k May 19, 2014
CF Innovators: Blown Away
4.2k
Concert Pharma’s Modified Version of Cystic Fibrosis Therapy Ivacaftor Outperforms Kalydeco in Early Testing
3.5k May 19, 2014
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