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In addition to the forums, the cysticfibrosis.com site contains information on clinical trials, gene therapy, testing, associations, research, events and member blogs. View these by category/comments by using the filters below, or scroll down to view all the blog archives at a glance. Read our website disclaimer.
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Hi Paul, just to clarify, it is not being used in other countries to treat CF, it is a medication that is at the moment used for treatment of different…

stylecomfy

Hi everyone, thank you for all the comments and questions, and thank you to Hessam for your valuable and proactive input. We unfortunately do not have any further information other…

Hessam

(-- medication brand name removed --) has not been tested nor approved by any institute as being a help for CF, not even close to clinical trial. Only Doctor Allen…

Paul Merritt

Is it possible to start trials for FDA approval here in the US? And could it be fast tracked since it is already used as treatment in other countries?

Marilyn Rogers

Do we know when (-- medication brand name removed --) will be available here in the U.S.? Praying soon. My grandchildren Ivy 6, and Jude 2 , along with all…

Kathi Grant

Has this drug been successful against the Delta F 508 mutation?

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