blog_headers1

CysticFibrosis.com is one of the world's largest social media networks dedicated exclusively to the cystic fibrosis community. In addition to the forums, the site contains information on clinical trials, gene therapy, testing, associations, research and events. Read our website disclaimer.

CysticFibrosis.com Newsletter Registration

View the blogs by category/comments by using the filters below, or scroll down to view all the blog archives at a glance.
stylecomfy

Hi Kathy, thanks for the recipe, it sounds delicious. Any chance you can send us a photo of these, so people can visualise it? If you have a picture, you…

Kathy Geiger

2 eggs 1 cup brown sugar 2 cups flour 1teaspoon baking powder 1 cup margarine 1 cup sugar 1 teaspoon vanilla 1 cup potato chips mix brown sugar and white…

Gerard

As a father of a child included in this trial I noticed significant weight gain (10%) in the first month but more importantly the I noticed were when picking them…

stylecomfy

Hi Paul, just to clarify, it is not being used in other countries to treat CF, it is a medication that is at the moment used for treatment of different…

stylecomfy

Hi everyone, thank you for all the comments and questions, and thank you to Hessam for your valuable and proactive input. We unfortunately do not have any further information other…

Hessam

(-- medication brand name removed --) has not been tested nor approved by any institute as being a help for CF, not even close to clinical trial. Only Doctor Allen…

FILTER BY CATEGORY

FILTER BY MONTH

blog_ataglance

MORE BLOGS, NEWS AND RESEARCH ARTICLES