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Large Scale CF survey on Personal Health and Wellness

January 9, 2021
560 11
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Roche Virtual Summit Lauren Brenneman speaks Innovation and the CF community

July 6, 2020
799 0
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Tips on Taking Care of Your Lungs with COVID-19 (from a successful Cystic Fibrosis patient)

April 27, 2020
1.8k 0
Alternative MedicineLiving With CF

Anxiety in CF: Can CBD oil help?

February 2, 2020
1.2k 0
APP for CFLiving With CF

CFTechnology and CreativeDestructionLab

October 3, 2019
750 0
Living With CF

Suggestions to Help You Manage Cystic Fibrosis at College

August 20, 2019
1.2k 0
APP for CF

Imogene attends: Deep Tech Pharma Philadelphia April 10, 2019

April 12, 2019
815 0
APP for CFLiving With CF

Technology’s Place in the Lives of Patients with Cystic Fibrosis

March 16, 2019
1.5k 0
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Gratitude: came in my inmail!

November 23, 2018
486 0
Living With CF

Going Back to School with Cystic Fibrosis (from our Archives)

September 8, 2018
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A Conversation with Gunnar Esiason
22.1k September 12, 2017
Cystic Fibrosis genetics: Know Your CF Mutations
9.5k November 21, 2015
What is Cystic Fibrosis – Infographic
6.4k June 21, 2017
Indrepta C now available for nonsense mutations
6.2k March 17, 2017
Cystic Fibrosis treatment: Hypertonic Saline Questions
4.3k February 4, 2016
CF Innovators: Blown Away
4.3k
Imogene attends: Deep Tech Pharma Philadelphia April 10, 2019
815 April 12, 2019
Welcome to CFTechnology.org video
324 July 7, 2018
A New Model for Patient Engagement for Cystic Fibrosis Patients and Caregivers
326 July 7, 2018
SSDI for people with Cystic Fibrosis
2k July 2, 2018
CURE-E-US: Our CF community has an UNMET NEED (Part 3)
260 May 12, 2018
Medicare and Cystic Fibrosis
1.2k May 7, 2018
Luxury Slingshot Rental

Luxury Slingshot Rental is a leading luxury car rental company which allows customers a stress-free car rental experience by providing excellent services. Slingshot is a 2-seat, 3-wheel wonder. It's classified…

simple wallpaper

Prestigious work right on target

Exams Help Online

Exams Help Online is a top-rated online class and exam help provider that is helping students all around the world with their difficult online exams and classes. We understand that…

alexander debrahan

There is no denying the fact that certain individuals are known to be at more risk in comparison to others. There are several reasons for the same.

lars

All the signatures of being helped by all people. The recipes are signed for the in-depth element for the girls. Its part is played for the host of the shows…

Tony Scott Dietrich

I recently came across your article and have been reading along. I want to express my admiration of your writing skill and ability to make readers read from the beginning…

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MORE BLOGS, NEWS AND RESEARCH ARTICLES

Large Scale CF survey on Personal Health and Wellness
560 January 9, 2021
Roche Virtual Summit Lauren Brenneman speaks Innovation and the CF community
799 July 6, 2020
Tips on Taking Care of Your Lungs with COVID-19 (from a successful Cystic Fibrosis patient)
1.8k April 27, 2020
Anxiety in CF: Can CBD oil help?
1.2k February 2, 2020
CFTechnology and CreativeDestructionLab
750 October 3, 2019
Suggestions to Help You Manage Cystic Fibrosis at College
1.2k August 20, 2019
Imogene attends: Deep Tech Pharma Philadelphia April 10, 2019
815 April 12, 2019
Technology’s Place in the Lives of Patients with Cystic Fibrosis
1.5k March 16, 2019
Gratitude: came in my inmail!
486 November 23, 2018
Going Back to School with Cystic Fibrosis (from our Archives)
1.3k September 8, 2018
Why Cystic Fibrosis and Blockchain? by LittleLab4CF
337 August 29, 2018
LittleLab4CF (our own Geneticist with Cystic Fibrosis) Helps us Understand Pharma/Patients and Blockchain
265 August 26, 2018
Welcome to CFTechnology.org video
324 July 7, 2018
A New Model for Patient Engagement for Cystic Fibrosis Patients and Caregivers
326 July 7, 2018
SSDI for people with Cystic Fibrosis
2k July 2, 2018
CURE-E-US: Our CF community has an UNMET NEED (Part 3)
260 May 12, 2018
Medicare and Cystic Fibrosis
1.2k May 7, 2018
Cure-E-Us: World Orphan Drug Congress Part 2
79 May 5, 2018
Cure-E-Us: Imogene at the World Orphan Drug Conference 2018 Part 1
315 May 2, 2018
Does Medicare Cover Lung Transplants?
2.1k April 26, 2018
Coping with the Loss of a Spouse from CF
1.1k April 17, 2018
Cure-E-Us Where is our Survey Leading?
315 March 22, 2018
Artificial Intelligence (AI)as told to Imogene by LittleLab4CF
295 March 4, 2018
ENF Scholarship and CF summer research program applications now open
352 February 21, 2018
Stem cell transplants for lung regeneration – promising breakthrough in China
2.2k February 17, 2018
LittleLab4CF on the potential of an enormously valuable Genomic Diary
186 February 10, 2018
DIY nebulizer sterilizer hack for Cystic Fibrosis treatments (member story)
3k February 3, 2018
Fashion tips and favorite products for my Cystic Fibrosis body
1.3k January 31, 2018
Survey: Future Casting for our Cystic Fibrosis Community! (Updates)
118 January 29, 2018
A New Hope for CF! (Planetary Biosciences Review – Jan 2018)
2.1k January 23, 2018
Blockchain, Cystic Fibrosis and Linnia
567 January 17, 2018
What’s new on the Cystic Fibrosis social media pages (@KnowCF)?
352 January 10, 2018
Getting paid for all the work it takes being a patient or caregiver with Cystic Fibrosis
433 January 10, 2018
A letter from Dr Corey Nislow – the obligation to change the way research is done
395 December 30, 2017
Cure-E-Us…Cystic Fibrosis 2018!
1.3k December 29, 2017
A Young Mom is Exploring BlockChain Technology
354 December 9, 2017
Gratitude! Remembering Blake’s example!
156 November 15, 2017
Market Research for Pulmozyme Users: Gift Cards given for an on line interview.
580 November 3, 2017
Your Cystic Fibrosis Data is Valuable! Watch the Video…Take the Survey!
283 October 23, 2017
Equal Access to Treatment for All with Cystic Fibrosis in the US?
1.8k September 28, 2017
An Interview: Jeanne Barnett and RXDigitalMarketing
299 September 19, 2017
TauriNAC Now Available
3.6k September 13, 2017
A Conversation with Gunnar Esiason
22.1k September 12, 2017
The Unidos pela Vida Institute – spreading knowledge about Cystic Fibrosis in Brazil
355 September 12, 2017
A Brain, A Heart, Courage: the e-Patient community for Cystic Fibrosis
463 August 21, 2017
D3forME Transdermal Vitamin D Patch: do you qualify?
1k August 19, 2017
Orkambi has simply changed my life…a Cystic Fibrosis reflection
3.4k August 19, 2017
Digital Spirometry and the Cystic Fibrosis patient
1k August 4, 2017
New on Cystic Fibrosis Social Media (@knowCF)
205 August 3, 2017
An App for Cystic Fibrosis to bring Data to Market
396 July 24, 2017
Tamika Grubbs RN Here to Help our Cystic Fibrosis Community!
486 July 10, 2017
New on Cystic Fibrosis Social Media (@knowCF)
145 July 10, 2017
Fertile Areas for Experimentation: a New App for Cystic Fibrosis!
288 July 7, 2017
The Data Will See You Now! and Cystic Fibrosis Data is Valuable!
280 July 6, 2017
Home Monitoring vs. Traditional Care in CF: Year-Long Study Results
570 July 4, 2017
What is Cystic Fibrosis – Infographic
6.4k June 21, 2017
Amber’s Cystic Fibrosis Miracle
2.4k June 16, 2017
Lung Clearance Index Improved in Children Ages 6-11 on Ivacaftor/Lumacaftor
789 June 15, 2017
Enchilada Casserole Anti-inflammatory Recipe (Cystic Fibrosis diet)
2.6k June 6, 2017
Low carb Cauliflower Crust Pizza (Cystic Fibrosis diet)
578 June 6, 2017
Personal Indrepta Results
2k May 23, 2017
Outcomes and Tolerances in Cystic Fibrosis Treatment Lumacaftor/Ivacaftor
794 May 22, 2017
Potato Chip Cookies (Cystic Fibrosis diet)
3.4k May 22, 2017
Lemon Olive Oil Cake (Cystic Fibrosis Diet)
692 May 14, 2017
Bacon Chocolate Chip Cookies (Cystic Fibrosis Diet)
545 May 8, 2017
Creamy Grape Salad Recipe (Cystic Fibrosis diet)
607 May 8, 2017
Yogurt Gummies recipe (Cystic Fibrosis diet)
3.2k May 8, 2017
Cystic Fibrosis diet: Recipe Contest! Win one of 4 x $50 Gift Cards
639 May 1, 2017
New on Cystic Fibrosis Social Media (@knowCF)
175 April 30, 2017
Full-Fat Fermented Dairy May Cause Less Inflammation Than Regular Dairy
2.9k April 23, 2017
New drug (Thymosin alpha 1) discovery: potential for Cystic Fibrosis treatment
3.8k April 17, 2017
Indrepta C Lottery Winners
553 April 15, 2017
AbbVie scholarship for students with cystic fibrosis
547 April 8, 2017
New on Cystic Fibrosis Social Media (@knowCF)
211 April 4, 2017
Orkambi Study On Children Age 6-12 With DDF508: Cystic Fibrosis Treatment
1.2k April 2, 2017
hard to treat Burkholderia cenocepacia
University of British Columbia studying B-cepacia with some success!
535 March 29, 2017
Risk of Hearing Loss from IV Aminoglycosides in Cystic Fibrosis
700 March 26, 2017
Indrepta C now available for nonsense mutations
6.2k March 17, 2017
Treatment for Cystic Fibrosis: Vertex Acquires Concert’s CFTR Potentiator CTP-656
743 March 13, 2017
Respiratory Health and Air Pollution
674 March 7, 2017
Does Ivacaftor Affect Lung Bacteria in Cystic Fibrosis?
1.1k February 27, 2017
New on our Cystic Fibrosis Social Media (@knowcf)
125 February 26, 2017
Research on CF and Exercise in Cystic Fibrosis treatment
1.5k February 23, 2017
Evolution of a New App for Cystic Fibrosis management
1.1k February 20, 2017
heart fibrosis
Pulmozyme May Extend Lives of People Without Cystic Fibrosis
1.5k February 12, 2017
New Guidelines for Cystic Fibrosis Diagnosis
2.5k February 7, 2017
Cystic Fibrosis fundraiser: Support us through AmazonSmile at no additional cost to you
684 January 31, 2017
New on our Cystic Fibrosis Social Media (@knowcf)
186 January 29, 2017
Cystic Fibrosis treatment: Foam roller benefits – a member blog
1.8k January 29, 2017
A Day with Portable Genomics for Cystic Fibrosis management
270 January 24, 2017
Radio Interview: CRISPR Gene Editing (relevant to Cystic Fibrosis genetics)
635 January 21, 2017
Miracle Flights: free medically-related air travel for ill patients, including for Cystic Fibrosis treatment
1.1k January 13, 2017
Cystic Fibrosis Lung Microbiome: Diversity and Lung Function
578 January 11, 2017
CFTR Function and Cigarette Smoke
1.1k January 7, 2017
Potential benefits of honey in Cystic Fibrosis Treatment
3.2k January 2, 2017
(Cystic Fibrosis Diabetes) First FDA approved artificial pancreas and other 2016 Digital health highlights
1.4k December 26, 2016
Vitamin D Supplements May Help Improve Lung Function in Cystic Fibrosis
432 December 22, 2016
ORKAMBI® (Lumacaftor/Ivacaftor) latest news: Germany, Australia availability
415 December 19, 2016
Member post: goals and managing expectations with Cystic Fibrosis
515 December 16, 2016
Lumacaftor/Ivacaftor longer trial on Heterozygous F508del Cystic Fibrosis Patients
1.5k December 8, 2016
Think INSIDE the box for easier inhaled treatments – cystic fibrosis treatment
804 December 5, 2016
Cystic Fibrosis Genetics: First Structural Map of Cystic Fibrosis Protein
408 December 3, 2016
The Lung Microbiome and Dysbiosis
510 November 18, 2016
Make Friends with your Legislators! Tell them about Cystic Fibrosis.
265 November 16, 2016
Redesigning Prescription Medication Inserts
191 November 13, 2016
Webinar: Infection Prevention During Bronchoscopy
318 November 9, 2016
10 Ways to Help When a Friend is Diagnosed With a Chronic Disease
226 November 9, 2016
Flourescent Sensor is a new Low-Cost Tool for Cystic Fibrosis diagnosis
242 November 4, 2016
North American Cystic Fibrosis Conference 2016
441 November 2, 2016
Thank YOU! This research is complete!
314 October 28, 2016
Mom takes on Vertex CEO about pricey Cystic Fibrosis Treatment Drugs
307 October 26, 2016
Bluetooth-enabled tech shows promise for adherence in Cystic Fibrosis treatment
160 October 20, 2016
Lung Bio-engineering Clinical Trial may benefit cystic fibrosis patients
510 October 14, 2016
The Bible for Transplants: make data driven decisions about lung transplant
316 October 7, 2016
Copper in Hospitals to Limit Cross-Infection
252 October 5, 2016
Distinguishing Relapse from Reinfection in MAC
961 September 27, 2016
Rare Disease Patient Advocacy Summit
171 September 19, 2016
How Much Do Orphan Drugs Cost?
195 September 14, 2016
Survey Shows A Lot of People Save Leftover Painkillers
134 September 13, 2016
Med-IQ: Creating a Partnership for Adherence in Cystic Fibrosis treatment
205 September 8, 2016
13 year-old with Cystic Fibrosis is a Top Surfer in South Carolina
436 September 7, 2016
A New Tool for Cystic Fibrosis Lung Monitoring
425 August 31, 2016
Organ Donation – Surprising Facts
2.2k August 23, 2016
First Winner! Probiotic/Prebiotic Recipe Contest (Cystic Fibrosis diet)
355 August 15, 2016
Drug Development Pipeline for Cystic Fibrosis treatment
1.2k August 9, 2016
Barnyard Dust and Preventing Asthma in Children (one of many Cystic Fibrosis symptoms)
534 August 5, 2016
New Antibiotic Discovered in our Noses could help treat Staph and MRSA
323 July 28, 2016
Probiotics and Prebiotics in Food – benefits in the cystic fibrosis diet
1.8k July 6, 2016
Intestinal Bacteria in Research Articles: immune system and digestion
362 June 30, 2016
CRISPR Finds Mutated DNA and Is Okayed for Clinical Trial
696 June 24, 2016
Climate Change and Respiratory Infections (cystic fibrosis symptoms)
561 June 21, 2016
Survey Filled – Thank you!
310 June 16, 2016
Fecal Microbial Transplants and “Gut” by Guilia Enders
1k June 16, 2016
Bugs into Drugs: Beyond Fecal Transplants
141 June 16, 2016
DNA ‘cages’ deliver drugs with zap of light
85 June 13, 2016
Matching Volunteers to Clinical Trials by App
160 June 12, 2016
Understanding Pharma Controversies in the News
633 June 8, 2016
Cystic Fibrosis Patients and Caregivers Becoming Experts in the Digital Arena
384 June 2, 2016
New low budget otoscope for early warning of hearing loss
222 May 25, 2016
Looking for a career choice? What to study?
316 May 25, 2016
SpiroCall: Lung Function Measured by Phone
840 May 16, 2016
Cystic Fibrosis treatment: lung transplant facts and member experiences
2.5k May 13, 2016
Wabi Baby Steam Sterilizer Contest
1.1k May 9, 2016
Parenting Children with Health Issues: From our Archives
171 May 3, 2016
The Science of Character
95 April 30, 2016
Documentary: Sisters living with Cystic Fibrosis
944 April 27, 2016
When a Bad Animal Model is Good: Cystic Fibrosis
126 April 23, 2016
SuperHero DNA
469 April 21, 2016
Cystic Fibrosis testing: Genetic and Rare Diseases Information Center
377 April 20, 2016
Cystic Fibrosis symptoms: Mayo clinic’s sinusitis treatment suggestions
1.2k April 18, 2016
Better Lung Scanning Technology
114 April 16, 2016
Survey of Cystic Fibrosis Patients by GeneFo
377 April 13, 2016
Individual Counseling Offered
237 April 11, 2016
The Importance of Treating Depression in People with Cystic Fibrosis
280 April 6, 2016
Xbox Kinect to Monitor Lung Function
355 March 30, 2016
Social Security Disability Benefits for people with Cystic Fibrosis
2.1k March 24, 2016
In the News: Inhaled Levofloxacin & QIDP Designation
334 March 23, 2016
Cystic Fibrosis: Three pilates exercises that may increase breathing strength
1.6k March 16, 2016
Put your legislators on your team!
131 March 14, 2016
Surprising Benefits from CF Research
265 March 9, 2016
What is an Anti-Inflammatory Diet?
2.5k February 29, 2016
It’s Been a Good Life Dad: My Son’s Struggle with Cystic Fibrosis
818 February 27, 2016
3D Printed Ear, Bone, and Muscle Tissue
235 February 24, 2016
Financial: Your Questions from the 2015 Survey
200 February 23, 2016
Dr. Warren Warwick, The Bell Curve
926 February 20, 2016
UCSD’s 3D Printed Liver Cells Most Liver-like Yet
570 February 17, 2016
Enzymes – Frequently Asked Questions
534 February 15, 2016
Toddler Bubby, taking enzymes for Cystic Fibrosis treatment
835 February 15, 2016
Brene Brown on Empathy
234 February 12, 2016
Sharktank: Jim Caldwell
1.6k February 11, 2016
Your Questions on Nutraceuticals
658 February 11, 2016
How cystic fibrosis promotes lung infections
321 February 10, 2016
We Lobby
203 February 9, 2016
Featured: A Love Worth Giving
153 February 6, 2016
Cystic Fibrosis treatment: Hypertonic Saline Questions
4.3k February 4, 2016
YOUR DATA! Your Questions on Self Management
1.6k February 3, 2016
Trial results of Ivacaftor in Cystic Fibrosis children ages 2-5
441 January 22, 2016
Genome editing with CRISPR-Cas9
918 January 13, 2016
New to CysticFibrosis.com
521 November 23, 2015
Newly Diagnosed: What is Cystic Fibrosis
3.4k November 22, 2015
Cystic Fibrosis testing: Genetic testing and sweat test
2k November 22, 2015
A Conversation on Filing Taxes with Cystic Fibrosis
2k November 22, 2015
Cystic Fibrosis Resource and Information Needs Survey
246 November 22, 2015
Parenting Tips
530 November 22, 2015
Cystic Fibrosis symptoms: Asthma, Allergies & Green FAQ
2.2k November 22, 2015
Join the Community
497 November 21, 2015
Ten Hurdles to Cystic Fibrosis Patient Adherence
4.2k November 21, 2015
Personal Spirometry and the Cystic Fibrosis Patient
1.4k November 21, 2015
Cystic Fibrosis genetics: Know Your CF Mutations
9.5k November 21, 2015
Enzyme FAQs
283 November 20, 2015
CF Patient To Climb the UK’s Three Highest Mountains in 24 Hours
1.9k September 24, 2015
New cystic fibrosis drug has high potential, high cost
359 September 23, 2015
Lauren Brenneman – Hartford Hospital cystic fibrosis case study
2.2k May 19, 2014
CF Innovators: Blown Away
4.3k
Concert Pharma’s Modified Version of Cystic Fibrosis Therapy Ivacaftor Outperforms Kalydeco in Early Testing
3.5k May 19, 2014
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