Living with CF - Blogs, news and research

VIEW THE LATEST ARTICLES BELOW

APP for CFLiving With CF

CFTechnology and CreativeDestructionLab

October 3, 2019
229 21
Living With CF

Suggestions to Help You Manage Cystic Fibrosis at College

August 20, 2019
451 33
APP for CF

Imogene attends: Deep Tech Pharma Philadelphia April 10, 2019

April 12, 2019
335 1
APP for CFLiving With CF

Technology’s Place in the Lives of Patients with Cystic Fibrosis

March 16, 2019
351 1
featured_memberLiving With CFUncategorized

Gratitude: came in my inmail!

November 23, 2018
174 0
Living With CF

Going Back to School with Cystic Fibrosis (from our Archives)

September 8, 2018
600 15
featured_memberLiving With CFNews & Events

Why Cystic Fibrosis and Blockchain? by LittleLab4CF

August 29, 2018
176 0
FinancialGeneticsLiving With CF

LittleLab4CF (our own Geneticist with Cystic Fibrosis) Helps us Understand Pharma/Patients and Blockchain

August 26, 2018
159 2
APP for CFLiving With CF

Welcome to CFTechnology.org video

July 7, 2018
153 1
APP for CFLiving With CFSurvey

A New Model for Patient Engagement for Cystic Fibrosis Patients and Caregivers

July 7, 2018
147 1
CysticFibrosis.com is one of the world's largest social media networks dedicated exclusively to the cystic fibrosis community. In addition to the forums, the site contains information on clinical trials, gene therapy, testing, associations, research and events. Read our website disclaimer.

CysticFibrosis.com Newsletter Registration

View the blogs by category/comments by using the filters below, or scroll down to view all the blog archives at a glance.
A Conversation with Gunnar Esiason
18.6k September 12, 2017
Cystic Fibrosis genetics: Know Your CF Mutations
6.5k November 21, 2015
Indrepta C now available for nonsense mutations
5k March 17, 2017
CF Innovators: Blown Away
4.1k
Ten Hurdles to Cystic Fibrosis Patient Adherence
4k November 21, 2015
What is Cystic Fibrosis – Infographic
3.8k June 21, 2017
Imogene attends: Deep Tech Pharma Philadelphia April 10, 2019
335 April 12, 2019
Welcome to CFTechnology.org video
153 July 7, 2018
A New Model for Patient Engagement for Cystic Fibrosis Patients and Caregivers
147 July 7, 2018
SSDI for people with Cystic Fibrosis
635 July 2, 2018
CURE-E-US: Our CF community has an UNMET NEED (Part 3)
90 May 12, 2018
Medicare and Cystic Fibrosis
544 May 7, 2018
assignment help

Wow!! I must admit that the content in your post is quite informative, educative and very commendable. It is rare to find such content in a blog and hence I…

Research paper helper

Thanks for the post

Travels booking

this is really a useful blog . i think it will be beneficial to all .thank you for such a helpful blog.

Valentines Day Images

Incredible points. Great arguments. Keep up the good

Valentines Day Poems

thank you so much for sharing

www.hulu.com/activate

Incredible points. Great arguments. Keep up the good spirit.

FILTER BY CATEGORY

FILTER BY MONTH

Blog archive at a glance

MORE BLOGS, NEWS AND RESEARCH ARTICLES

CFTechnology and CreativeDestructionLab
229 October 3, 2019
Suggestions to Help You Manage Cystic Fibrosis at College
451 August 20, 2019
Imogene attends: Deep Tech Pharma Philadelphia April 10, 2019
335 April 12, 2019
Technology’s Place in the Lives of Patients with Cystic Fibrosis
351 March 16, 2019
Gratitude: came in my inmail!
174 November 23, 2018
Going Back to School with Cystic Fibrosis (from our Archives)
600 September 8, 2018
Why Cystic Fibrosis and Blockchain? by LittleLab4CF
176 August 29, 2018
LittleLab4CF (our own Geneticist with Cystic Fibrosis) Helps us Understand Pharma/Patients and Blockchain
159 August 26, 2018
Welcome to CFTechnology.org video
153 July 7, 2018
A New Model for Patient Engagement for Cystic Fibrosis Patients and Caregivers
147 July 7, 2018
SSDI for people with Cystic Fibrosis
635 July 2, 2018
CURE-E-US: Our CF community has an UNMET NEED (Part 3)
90 May 12, 2018
Medicare and Cystic Fibrosis
544 May 7, 2018
Cure-E-Us: World Orphan Drug Congress Part 2
21 May 5, 2018
Cure-E-Us: Imogene at the World Orphan Drug Conference 2018 Part 1
168 May 2, 2018
Does Medicare Cover Lung Transplants?
1.4k April 26, 2018
Coping with the Loss of a Spouse from CF
789 April 17, 2018
Cure-E-Us Where is our Survey Leading?
128 March 22, 2018
Artificial Intelligence (AI)as told to Imogene by LittleLab4CF
183 March 4, 2018
ENF Scholarship and CF summer research program applications now open
237 February 21, 2018
Stem cell transplants for lung regeneration – promising breakthrough in China
1.7k February 17, 2018
LittleLab4CF on the potential of an enormously valuable Genomic Diary
121 February 10, 2018
DIY nebulizer sterilizer hack for Cystic Fibrosis treatments (member story)
1.5k February 3, 2018
Fashion tips and favorite products for my Cystic Fibrosis body
645 January 31, 2018
Survey: Future Casting for our Cystic Fibrosis Community! (Updates)
82 January 29, 2018
A New Hope for CF! (Planetary Biosciences Review – Jan 2018)
1.7k January 23, 2018
Blockchain, Cystic Fibrosis and Linnia
394 January 17, 2018
What’s new on the Cystic Fibrosis social media pages (@KnowCF)?
160 January 10, 2018
Getting paid for all the work it takes being a patient or caregiver with Cystic Fibrosis
314 January 10, 2018
A letter from Dr Corey Nislow – the obligation to change the way research is done
250 December 30, 2017
Cure-E-Us…Cystic Fibrosis 2018!
1.1k December 29, 2017
A Young Mom is Exploring BlockChain Technology
234 December 9, 2017
Gratitude! Remembering Blake’s example!
86 November 15, 2017
Market Research for Pulmozyme Users: Gift Cards given for an on line interview.
541 November 3, 2017
Your Cystic Fibrosis Data is Valuable! Watch the Video…Take the Survey!
213 October 23, 2017
Equal Access to Treatment for All with Cystic Fibrosis in the US?
1k September 28, 2017
An Interview: Jeanne Barnett and RXDigitalMarketing
173 September 19, 2017
TauriNAC Now Available
2.5k September 13, 2017
A Conversation with Gunnar Esiason
18.6k September 12, 2017
The Unidos pela Vida Institute – spreading knowledge about Cystic Fibrosis in Brazil
195 September 12, 2017
A Brain, A Heart, Courage: the e-Patient community for Cystic Fibrosis
211 August 21, 2017
D3forME Transdermal Vitamin D Patch: do you qualify?
704 August 19, 2017
Orkambi has simply changed my life…a Cystic Fibrosis reflection
2.7k August 19, 2017
Digital Spirometry and the Cystic Fibrosis patient
610 August 4, 2017
New on Cystic Fibrosis Social Media (@knowCF)
113 August 3, 2017
An App for Cystic Fibrosis to bring Data to Market
241 July 24, 2017
Tamika Grubbs RN Here to Help our Cystic Fibrosis Community!
274 July 10, 2017
New on Cystic Fibrosis Social Media (@knowCF)
98 July 10, 2017
Fertile Areas for Experimentation: a New App for Cystic Fibrosis!
174 July 7, 2017
The Data Will See You Now! and Cystic Fibrosis Data is Valuable!
206 July 6, 2017
Home Monitoring vs. Traditional Care in CF: Year-Long Study Results
389 July 4, 2017
What is Cystic Fibrosis – Infographic
3.8k June 21, 2017
Amber’s Cystic Fibrosis Miracle
1.8k June 16, 2017
Lung Clearance Index Improved in Children Ages 6-11 on Ivacaftor/Lumacaftor
423 June 15, 2017
Enchilada Casserole Anti-inflammatory Recipe (Cystic Fibrosis diet)
785 June 6, 2017
Low carb Cauliflower Crust Pizza (Cystic Fibrosis diet)
221 June 6, 2017
Personal Indrepta Results
1.5k May 23, 2017
Outcomes and Tolerances in Cystic Fibrosis Treatment Lumacaftor/Ivacaftor
488 May 22, 2017
Potato Chip Cookies (Cystic Fibrosis diet)
1.5k May 22, 2017
Lemon Olive Oil Cake (Cystic Fibrosis Diet)
335 May 14, 2017
Bacon Chocolate Chip Cookies (Cystic Fibrosis Diet)
145 May 8, 2017
Creamy Grape Salad Recipe (Cystic Fibrosis diet)
207 May 8, 2017
Yogurt Gummies recipe (Cystic Fibrosis diet)
1.4k May 8, 2017
Cystic Fibrosis diet: Recipe Contest! Win one of 4 x $50 Gift Cards
418 May 1, 2017
New on Cystic Fibrosis Social Media (@knowCF)
92 April 30, 2017
Full-Fat Fermented Dairy May Cause Less Inflammation Than Regular Dairy
1.7k April 23, 2017
New drug (Thymosin alpha 1) discovery: potential for Cystic Fibrosis treatment
3.4k April 17, 2017
Indrepta C Lottery Winners
415 April 15, 2017
AbbVie scholarship for students with cystic fibrosis
481 April 8, 2017
New on Cystic Fibrosis Social Media (@knowCF)
122 April 4, 2017
Orkambi Study On Children Age 6-12 With DDF508: Cystic Fibrosis Treatment
929 April 2, 2017
hard to treat Burkholderia cenocepacia
University of British Columbia studying B-cepacia with some success!
392 March 29, 2017
Risk of Hearing Loss from IV Aminoglycosides in Cystic Fibrosis
474 March 26, 2017
Indrepta C now available for nonsense mutations
5k March 17, 2017
Treatment for Cystic Fibrosis: Vertex Acquires Concert’s CFTR Potentiator CTP-656
627 March 13, 2017
Respiratory Health and Air Pollution
481 March 7, 2017
Does Ivacaftor Affect Lung Bacteria in Cystic Fibrosis?
985 February 27, 2017
New on our Cystic Fibrosis Social Media (@knowcf)
81 February 26, 2017
Research on CF and Exercise in Cystic Fibrosis treatment
1.1k February 23, 2017
Evolution of a New App for Cystic Fibrosis management
773 February 20, 2017
heart fibrosis
Pulmozyme May Extend Lives of People Without Cystic Fibrosis
1.2k February 12, 2017
New Guidelines for Cystic Fibrosis Diagnosis
1.8k February 7, 2017
Cystic Fibrosis fundraiser: Support us through AmazonSmile at no additional cost to you
426 January 31, 2017
New on our Cystic Fibrosis Social Media (@knowcf)
115 January 29, 2017
Cystic Fibrosis treatment: Foam roller benefits – a member blog
1.2k January 29, 2017
A Day with Portable Genomics for Cystic Fibrosis management
185 January 24, 2017
Radio Interview: CRISPR Gene Editing (relevant to Cystic Fibrosis genetics)
396 January 21, 2017
Miracle Flights: free medically-related air travel for ill patients, including for Cystic Fibrosis treatment
714 January 13, 2017
Cystic Fibrosis Lung Microbiome: Diversity and Lung Function
420 January 11, 2017
CFTR Function and Cigarette Smoke
857 January 7, 2017
Potential benefits of honey in Cystic Fibrosis Treatment
2.8k January 2, 2017
(Cystic Fibrosis Diabetes) First FDA approved artificial pancreas and other 2016 Digital health highlights
911 December 26, 2016
Vitamin D Supplements May Help Improve Lung Function in Cystic Fibrosis
327 December 22, 2016
ORKAMBI® (Lumacaftor/Ivacaftor) latest news: Germany, Australia availability
311 December 19, 2016
Member post: goals and managing expectations with Cystic Fibrosis
297 December 16, 2016
Lumacaftor/Ivacaftor longer trial on Heterozygous F508del Cystic Fibrosis Patients
1.3k December 8, 2016
Think INSIDE the box for easier inhaled treatments – cystic fibrosis treatment
573 December 5, 2016
Cystic Fibrosis Genetics: First Structural Map of Cystic Fibrosis Protein
240 December 3, 2016
The Lung Microbiome and Dysbiosis
354 November 18, 2016
Make Friends with your Legislators! Tell them about Cystic Fibrosis.
214 November 16, 2016
Redesigning Prescription Medication Inserts
85 November 13, 2016
Webinar: Infection Prevention During Bronchoscopy
160 November 9, 2016
10 Ways to Help When a Friend is Diagnosed With a Chronic Disease
178 November 9, 2016
Flourescent Sensor is a new Low-Cost Tool for Cystic Fibrosis diagnosis
186 November 4, 2016
North American Cystic Fibrosis Conference 2016
321 November 2, 2016
Thank YOU! This research is complete!
269 October 28, 2016
Mom takes on Vertex CEO about pricey Cystic Fibrosis Treatment Drugs
255 October 26, 2016
Bluetooth-enabled tech shows promise for adherence in Cystic Fibrosis treatment
120 October 20, 2016
Lung Bio-engineering Clinical Trial may benefit cystic fibrosis patients
260 October 14, 2016
The Bible for Transplants: make data driven decisions about lung transplant
263 October 7, 2016
Copper in Hospitals to Limit Cross-Infection
201 October 5, 2016
Distinguishing Relapse from Reinfection in MAC
592 September 27, 2016
Rare Disease Patient Advocacy Summit
129 September 19, 2016
How Much Do Orphan Drugs Cost?
147 September 14, 2016
Survey Shows A Lot of People Save Leftover Painkillers
99 September 13, 2016
Med-IQ: Creating a Partnership for Adherence in Cystic Fibrosis treatment
136 September 8, 2016
13 year-old with Cystic Fibrosis is a Top Surfer in South Carolina
261 September 7, 2016
A New Tool for Cystic Fibrosis Lung Monitoring
314 August 31, 2016
Organ Donation – Surprising Facts
1.4k August 23, 2016
First Winner! Probiotic/Prebiotic Recipe Contest (Cystic Fibrosis diet)
265 August 15, 2016
Drug Development Pipeline for Cystic Fibrosis treatment
929 August 9, 2016
Barnyard Dust and Preventing Asthma in Children (one of many Cystic Fibrosis symptoms)
428 August 5, 2016
New Antibiotic Discovered in our Noses could help treat Staph and MRSA
177 July 28, 2016
Probiotics and Prebiotics in Food – benefits in the cystic fibrosis diet
1.4k July 6, 2016
Intestinal Bacteria in Research Articles: immune system and digestion
236 June 30, 2016
CRISPR Finds Mutated DNA and Is Okayed for Clinical Trial
598 June 24, 2016
Climate Change and Respiratory Infections (cystic fibrosis symptoms)
448 June 21, 2016
Survey Filled – Thank you!
265 June 16, 2016
Fecal Microbial Transplants and “Gut” by Guilia Enders
760 June 16, 2016
Bugs into Drugs: Beyond Fecal Transplants
94 June 16, 2016
DNA ‘cages’ deliver drugs with zap of light
56 June 13, 2016
Matching Volunteers to Clinical Trials by App
115 June 12, 2016
Understanding Pharma Controversies in the News
357 June 8, 2016
Cystic Fibrosis Patients and Caregivers Becoming Experts in the Digital Arena
193 June 2, 2016
New low budget otoscope for early warning of hearing loss
179 May 25, 2016
Looking for a career choice? What to study?
122 May 25, 2016
SpiroCall: Lung Function Measured by Phone
663 May 16, 2016
Cystic Fibrosis treatment: lung transplant facts and member experiences
2.1k May 13, 2016
Wabi Baby Steam Sterilizer Contest
800 May 9, 2016
Parenting Children with Health Issues: From our Archives
123 May 3, 2016
The Science of Character
51 April 30, 2016
Documentary: Sisters living with Cystic Fibrosis
559 April 27, 2016
When a Bad Animal Model is Good: Cystic Fibrosis
72 April 23, 2016
SuperHero DNA
270 April 21, 2016
Cystic Fibrosis testing: Genetic and Rare Diseases Information Center
226 April 20, 2016
Cystic Fibrosis symptoms: Mayo clinic’s sinusitis treatment suggestions
775 April 18, 2016
Better Lung Scanning Technology
75 April 16, 2016
Survey of Cystic Fibrosis Patients by GeneFo
290 April 13, 2016
Individual Counseling Offered
176 April 11, 2016
The Importance of Treating Depression in People with Cystic Fibrosis
202 April 6, 2016
Xbox Kinect to Monitor Lung Function
305 March 30, 2016
Social Security Disability Benefits for people with Cystic Fibrosis
1.7k March 24, 2016
In the News: Inhaled Levofloxacin & QIDP Designation
257 March 23, 2016
Cystic Fibrosis: Three pilates exercises that may increase breathing strength
1.2k March 16, 2016
Put your legislators on your team!
94 March 14, 2016
Surprising Benefits from CF Research
211 March 9, 2016
What is an Anti-Inflammatory Diet?
1.7k February 29, 2016
It’s Been a Good Life Dad: My Son’s Struggle with Cystic Fibrosis
649 February 27, 2016
3D Printed Ear, Bone, and Muscle Tissue
152 February 24, 2016
Financial: Your Questions from the 2015 Survey
153 February 23, 2016
Dr. Warren Warwick, The Bell Curve
653 February 20, 2016
UCSD’s 3D Printed Liver Cells Most Liver-like Yet
255 February 17, 2016
Enzymes – Frequently Asked Questions
438 February 15, 2016
Toddler Bubby, taking enzymes for Cystic Fibrosis treatment
311 February 15, 2016
Brene Brown on Empathy
155 February 12, 2016
Sharktank: Jim Caldwell
1.3k February 11, 2016
Your Questions on Nutraceuticals
282 February 11, 2016
How cystic fibrosis promotes lung infections
278 February 10, 2016
We Lobby
143 February 9, 2016
Featured: A Love Worth Giving
97 February 6, 2016
Cystic Fibrosis treatment: Hypertonic Saline Questions
3.3k February 4, 2016
YOUR DATA! Your Questions on Self Management
654 February 3, 2016
Trial results of Ivacaftor in Cystic Fibrosis children ages 2-5
266 January 22, 2016
Genome editing with CRISPR-Cas9
736 January 13, 2016
New to CysticFibrosis.com
464 November 23, 2015
Newly Diagnosed: What is Cystic Fibrosis
2.6k November 22, 2015
Cystic Fibrosis testing: Genetic testing and sweat test
1.6k November 22, 2015
A Conversation on Filing Taxes with Cystic Fibrosis
1.7k November 22, 2015
Cystic Fibrosis Resource and Information Needs Survey
196 November 22, 2015
Parenting Tips
338 November 22, 2015
Cystic Fibrosis symptoms: Asthma, Allergies & Green FAQ
1.5k November 22, 2015
Join the Community
363 November 21, 2015
Ten Hurdles to Cystic Fibrosis Patient Adherence
4k November 21, 2015
Personal Spirometry and the Cystic Fibrosis Patient
1k November 21, 2015
Cystic Fibrosis genetics: Know Your CF Mutations
6.5k November 21, 2015
Enzyme FAQs
186 November 20, 2015
CF Patient To Climb the UK’s Three Highest Mountains in 24 Hours
1.5k September 24, 2015
New cystic fibrosis drug has high potential, high cost
275 September 23, 2015
Lauren Brenneman – Hartford Hospital cystic fibrosis case study
2k May 19, 2014
CF Innovators: Blown Away
4.1k
Concert Pharma’s Modified Version of Cystic Fibrosis Therapy Ivacaftor Outperforms Kalydeco in Early Testing
3.4k May 19, 2014
0 November 30, -0001
© 2017. Medrise. All Rights Reserved.